Tashkandi E, Zeeneldin A, AlAbdulwahab A, Elemam O, Elsamany S, Jastaniah W, Abdullah S, Alfayez M, Jazieh AR, Al-Shamsi HO (2020) Virtual management of patients with Cancer during the COVID-19 pandemic: web-based Questionnaire Study. J Med Internet Res 22:e19691. https://doi.org/10.2196/19691
Article PubMed PubMed Central Google Scholar
Taylor AJ, Little MP, Winter DL, Sugden E, Ellison DW, Stiller CA, Stovall M, Frobisher C, Lancashire ER, Reulen RC, Hawkins MM (2010) Population-based risks of CNS tumors in survivors of childhood cancer: the british Childhood Cancer Survivor Study. J Clin Oncol 28:5287–5293. https://doi.org/10.1200/JCO.2009.27.0090
Article PubMed PubMed Central Google Scholar
Dama E, Pastore G, Mosso ML, Ferrante D, Maule MM, Magnani C, Merletti F (2006) Late deaths among five-year survivors of childhood cancer. A population-based study in Piedmont Region. Italy Haematol 91:1084–1091
Armstrong GT, Liu Q, Yasui Y, Huang S, Ness KK, Leisenring W, Hudson MM, Donaldson SS, King AA, Stovall M, Krull KR, Robison LL, Packer RJ (2009) Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study. J Natl Cancer Inst 101:946–958. https://doi.org/10.1093/jnci/djp148
Article PubMed PubMed Central Google Scholar
Stavinoha PL, Askins MA, Powell SK, Pillay Smiley N, Robert RS (2018) Neurocognitive and psychosocial outcomes in Pediatric Brain Tumor Survivors. Bioeng (Basel) 5. https://doi.org/10.3390/bioengineering5030073
Hardy KK, Bonner MJ, Willard VW, Watral MA, Gururangan S (2008) Hydrocephalus as a possible additional contributor to cognitive outcome in survivors of pediatric medulloblastoma. Psychooncology 17:1157–1161. https://doi.org/10.1002/pon.1349
Duffner PK (2010) Risk factors for cognitive decline in children treated for brain tumors. Eur J Paediatr Neurol 14:106–115. https://doi.org/10.1016/j.ejpn.2009.10.005
Patel SK, Mullins WA, O’Neil SH, Wilson K (2011) Neuropsychological differences between survivors of supratentorial and infratentorial brain tumours. J Intellect Disabil Res 55:30–40. https://doi.org/10.1111/j.1365-2788.2010.01344.x
Article CAS PubMed Google Scholar
Beebe DW, Ris MD, Armstrong FD, Fontanesi J, Mulhern R, Holmes E, Wisoff JH (2005) Cognitive and adaptive outcome in low-grade pediatric cerebellar astrocytomas: evidence of diminished cognitive and adaptive functioning in National Collaborative Research Studies (CCG 9891/POG 9130). J Clin Oncol 23:5198–5204. https://doi.org/10.1200/JCO.2005.06.117
Jalali R, Mallick I, Dutta D, Goswami S, Gupta T, Munshi A, Deshpande D, Sarin R (2010) Factors influencing neurocognitive outcomes in young patients with benign and low-grade brain tumors treated with stereotactic conformal radiotherapy. Int J Radiat Oncol Biol Phys 77:974–979. https://doi.org/10.1016/j.ijrobp.2009.06.025
Mueller S, Kline CN, Buerki RA, Chen Y, Yasui Y, Howell R, Oeffinger KC, Leisenring WM, Robison LL, Armstrong GT, Fullerton HJ, Krull KR (2020) Stroke impact on mortality and psychologic morbidity within the Childhood Cancer Survivor Study. Cancer 126:1051–1059. https://doi.org/10.1002/cncr.32612
Landier W, Wallace WH, Hudson MM (2006) Long-term follow-up of pediatric cancer survivors: education, surveillance, and screening. Pediatr Blood Cancer 46:149–158. https://doi.org/10.1002/pbc.20612
Robison LL, Green DM, Hudson M, Meadows AT, Mertens AC, Packer RJ, Sklar CA, Strong LC, Yasui Y, Zeltzer LK (2005) Long-term outcomes of adult survivors of childhood cancer. Cancer 104:2557–2564. https://doi.org/10.1002/cncr.21249
Skinner R, Wallace WH, Levitt G (2007) Long-term follow-up of children treated for cancer: why is it necessary, by whom, where and how? Arch Dis Child 92:257–260. https://doi.org/10.1136/adc.2006.095513
Article PubMed PubMed Central Google Scholar
Wells EM, Ullrich NJ, Seidel K, Leisenring W, Sklar CA, Armstrong GT, Diller L, King A, Krull KR, Neglia JP, Stovall M, Whelan K, Oeffinger KC, Robison LL, Packer RJ (2018) Longitudinal assessment of late-onset neurologic conditions in survivors of childhood central nervous system tumors: a Childhood Cancer Survivor Study report. Neuro Oncol 20:132–142. https://doi.org/10.1093/neuonc/nox148
Brinkman TM, Ness KK, Li Z, Huang IC, Krull KR, Gajjar A, Merchant TE, Klosky JL, Partin RE, Tonning Olsson I, Boop F, Klimo P, Chemaitilly W, Khan RB, Srivastava D, Robison LL, Hudson MM, Armstrong GT (2018) Attainment of Functional and Social Independence in Adult Survivors of Pediatric CNS tumors: a Report from the St Jude Lifetime Cohort Study. J Clin Oncol 36:2762–2769. https://doi.org/10.1200/JCO.2018.77.9454
Article PubMed PubMed Central Google Scholar
Landier W, Skinner R, Wallace WH, Hjorth L, Mulder RL, Wong FL, Yasui Y, Bhakta N, Constine LS, Bhatia S, Kremer LC, Hudson MM (2018) Surveillance for late Effects in Childhood Cancer Survivors. J Clin Oncol 36:2216–2222. https://doi.org/10.1200/JCO.2017.77.0180
Article PubMed PubMed Central Google Scholar
Chang PJ, Jay GM, Kalpakjian C, Andrews C, Smith S (2021) Patient and provider-reported satisfaction of Cancer Rehabilitation Telemedicine visits during the COVID-19 pandemic. PM R 13:1362–1368. https://doi.org/10.1002/pmrj.12552
Article PubMed PubMed Central Google Scholar
Arem H, Moses J, Cisneros C, Blondeau B, Nekhlyudov L, Killackey M, Pratt-Chapman ML (2022) Cancer Provider and Survivor Experiences with Telehealth during the COVID-19 pandemic. JCO Oncol Pract 18:e452–e461. https://doi.org/10.1200/OP.21.00401
Mehrotra A, Jena AB, Busch AB, Souza J, Uscher-Pines L, Landon BE (2016) Utilization of Telemedicine among Rural Medicare beneficiaries. JAMA 315:2015–2016. https://doi.org/10.1001/jama.2016.2186
Article PubMed PubMed Central Google Scholar
Kenney LB, Vrooman LM, Lind ED, Brace-O’Neill J, Mulder JE, Nekhlyudov L, Recklitis CJ (2021) Virtual visits as long-term follow-up care for childhood cancer survivors: patient and provider satisfaction during the COVID-19 pandemic. Pediatr Blood Cancer 68:e28927. https://doi.org/10.1002/pbc.28927
Article CAS PubMed PubMed Central Google Scholar
Aghedo BO, Svoboda S, Holmes L, Man L, Wu Y, Linder J, D’Adamo C, Mavanur A, Poehler K, Codling D, Wolf JH (2021) Telehealth Adaptation for Multidisciplinary Colorectal Cancer Clinic during the COVID-19 pandemic. Cureus 13:e17848. https://doi.org/10.7759/cureus.17848
Article PubMed PubMed Central Google Scholar
Donelan K, Barreto EA, Sossong S, Michael C, Estrada JJ, Cohen AB, Wozniak J, Schwamm LH (2019) Patient and clinician experiences with telehealth for patient follow-up care. Am J Manag Care 25:40–44
Spelten ER, Hardman RN, Pike KE, Yuen EYN, Wilson C (2021) Best practice in the implementation of telehealth-based supportive cancer care: using research evidence and discipline-based guidance. Patient Educ Couns 104:2682–2699. https://doi.org/10.1016/j.pec.2021.04.006
Kam V, Hendershot E, Anderson L, Marjerrison S (2017) Evaluation of a joint adult and pediatric clinic for cancer survivorship care. Pediatr Blood Cancer 64. https://doi.org/10.1002/pbc.26476
Young JM, Walsh J, Butow PN, Solomon MJ, Shaw J (2011) Measuring cancer care coordination: development and validation of a questionnaire for patients. BMC Cancer 11:298. https://doi.org/10.1186/1471-2407-11-298
Article PubMed PubMed Central Google Scholar
Cacciotti C, Fleming A, Duckworth J, Tseitlin H, Anderson L, Marjerrison S (2022) Late effects care for childhood brain Tumor Survivors: a Quality-Improvement Initiative. Pediatr Hematol Oncol 39:291–303. https://doi.org/10.1080/08880018.2021.1987599
Brigham MG Research Information Science & Computing. https://rc.partners.org/research-apps-and-services/collect-data
Ellenberg L, Liu Q, Gioia G, Yasui Y, Packer RJ, Mertens A, Donaldson SS, Stovall M, Kadan-Lottick N, Armstrong G, Robison LL, Zeltzer LK (2009) Neurocognitive status in long-term survivors of childhood CNS malignancies: a report from the Childhood Cancer Survivor Study. Neuropsychology 23:705–717. https://doi.org/10.1037/a0016674
Article PubMed PubMed Central Google Scholar
Gurney JG, Kadan-Lottick NS, Packer RJ, Neglia JP, Sklar CA, Punyko JA, Stovall M, Yasui Y, Nicholson HS, Wolden S, McNeil DE, Mertens AC, Robison LL, Study CCS (2003) Endocrine and cardiovascular late effects among adult survivors of childhood brain tumors: Childhood Cancer Survivor Study. Cancer 97:663–673. https://doi.org/10.1002/cncr.11095
Gurney JG, Krull KR, Kadan-Lottick N, Nicholson HS, Nathan PC, Zebrack B, Tersak JM, Ness KK (2009) Social outcomes in the Childhood Cancer Survivor Study cohort. J Clin Oncol 27:2390–2395. https://doi.org/10.1200/JCO.2008.21.1458
Article PubMed PubMed Central Google Scholar
Kenzik KM, Huang IC, Brinkman TM, Baughman B, Ness KK, Shenkman EA, Hudson MM, Robison LL, Krull KR (2015) The Childhood Cancer Survivor Study-Neurocognitive Questionnaire (CCSS-NCQ) revised: item response analysis and concurrent validity. Neuropsychology 29:31–44. https://doi.org/10.1037/neu0000095
Almathami HKY, Win KT, Vlahu-Gjorgievska E (2020) Barriers and facilitators that influence Telemedicine-Based, Real-Time, Online Consultation at Patients’ Homes: systematic literature review. J Med Internet Res 22:e16407. https://doi.org/10.2196/16407
Article PubMed PubMed Central Google Scholar
Chan RJ, Crichton M, Crawford-Williams F, Agbejule OA, Yu K, Hart NH, de Abreu Alves F, Ashbury FD, Eng L, Fitch M, Jain H, Jefford M, Klemanski D, Koczwara B, Loh K, Prasad M, Rugo H, Soto-Perez-de-Celis E, van den Hurk C, Chan A, Group MAoSCiCMSS (2021) The efficacy, challenges, and facilitators of telemedicine in post-treatment cancer survivorship care: an overview of systematic reviews. Ann Oncol 32: 1552–1570 doi:https://doi.org/10.1016/j.annonc.2021.09.001
Mehrotra A, Bhatia RS, Snoswell CL (2021) Paying for Telemedicine after the pandemic. JAMA 325:431–432. https://doi.org/10.1001/jama.2020.25706
Article PubMed PubMed Central Google Scholar
Heyer A, Granberg RE, Rising KL, Binder AF, Gentsch AT, Handley NR (2021) Medical oncology professionals’ perceptions of Telehealth Video visits. JAMA Netw Open 4:e2033967. https://doi.org/10.1001/jamanetworkopen.2020.33967
Article PubMed PubMed Central Google Scholar
Curtis ME, Clingan SE, Guo H, Zhu Y, Mooney LJ, Hser YI (2022) Disparities in digital access among american rural and urban households and implications for telemedicine-based services. J Rural Health 38:512–518. https://doi.org/10.1111/jrh.12614
Chesser A, Burke A, Reyes J, Rohrberg T (2016) Navigating the digital divide: a systematic review of eHealth literacy in underserved populations in the United States. Inf Health Soc Care 41:1–19. https://doi.org/10.3109/17538157.2014.948171
留言 (0)