The development and usability testing of two arts-based knowledge translation tools for parents of children with functional constipation

Abstract

Pediatric functional constipation (FC) is a common childhood problem that involves difficult or painful defecation and can be caused by a variety of different factors. In children, FC is often unrecognized and poorly treated, and has potential to cause abdominal pain, appetite suppression, loss of control over defecation, and family disruption. A recent interpretive description qualitative study found that parents who care for children with FC often experience a myriad of negative sentiments, including isolation and self-doubt. Furthermore, parents often have unanswered questions about the condition, particularly regarding the cause, symptoms, and treatment options. As such, more effective knowledge translation (KT) tools are needed to satisfy parental information needs.

The purpose of this research was to collaborate with parents to develop and test the usability of two animated KT tools (video and interactive infographic) on FC in children. Prototypes were co-developed with parents, and then evaluated by parents through usability testing in a large Alberta emergency department waiting room. Usability was assessed based on nine items with responses on a five-point Likert scale from 1=strongly disagree to 5=strongly agree. Overall, results were positive and the tools were highly rated across most usability items. Mean scores across usability items were 4.20 to 4.59 for the video and 3.73 to 4.30 for the infographic. The scores from the usability testing suggest arts-based digital tools are useful in sharing complex health information with parents about FC and provide meaningful guidance on how to improve KT tools to better reflect the needs of parents of children with FC.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This work was funded by: Canadian Institutes of Health Research: Scott, S.D. (co-PI), Hartling, L. (co-PI), Ali, S., Currie, G., Dyson, M., Fernandes, R., Fleck, B., Freedman, S., Jabbour, M., Johnson, D., Junker, A., Klassen, T., Maynard, D., Newton, A., Plint, A., Richer, L., Robinson, J., Robson, K., Vandall-Walker, V. [all collaborators listed in alphabetical order]. (2016). Integrating evidence and parent engagement to optimize children's healthcare. CIHR Foundation Scheme ($2,500,000). July 2016-June 2026. Studentship Funding (awarded to AT) also supported this project, as well as matched funds awarded to Scott and Hartling as part of the Translating emergency knowledge for kids (TREKK) project. Infrastructure funding was provided by: Networks of Centres of Excellence: Klassen, T., Hartling, L., Jabbour, M., Johnson, D., & Scott, S.D. (2015). Translating emergency knowledge for kids (TREKK). Networks of Centres of Excellence of Canada Knowledge Mobilization Renewal ($1,200,000). January 2016-December 2019. Stollery Children's Hospital Foundation and the Women's and Children Health Research Institute Scott, S.D., Hartling, L. Distinguished Researcher Funding. (2018). Women and Children's Health Research Institute & Stollery Children's Hospital Foundation ($1,000,000). September 2018-August 2023.

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I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

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The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

University of Alberta Health Research Ethics Board (Edmonton, Alberta)

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