The development and usability testing of two arts-based knowledge translation tools for pediatric asthma

Abstract

Asthma is the most common chronic condition in children with an estimated 15% of children and youth living with asthma in Canada. Acute asthma exacerbations, or asthma attacks, are the main reason for children to seek emergency care, contributing to financial burdens for families and healthcare systems. This burden highlights opportunities to reduce health system costs and improve patient and family education. We worked with parents of children with asthma to develop and evaluate two digital knowledge translation (KT) tools on asthma. These tools merge the best available research evidence with narratives of parent experiences, and use art and engaging media (video and interactive infographic) to optimize uptake and appeal. Following prototype completion, usability testing was conducted among 60 parents (30 parents per tool) in an urban Alberta emergency department waiting room. Parents viewed the tools on an iPad and answered questions via an electronic survey. Usability was assessed based on nine items with responses on a five-point Likert scale from 1=strongly disagree to 5=strongly agree. Overall, results were positive and the tools were highly rated across most usability items. Mean scores across usability items were 4.13 to 4.63 for the video and 4.10 to 4.43 for the infographic. The scores from the usability testing suggest arts-based digital tools are useful in sharing complex health information with parents about the care of a child with asthma and provide meaningful guidance on how to improve KT tools to better reflect the needs of parents of children with asthma.

Competing Interest Statement

The authors have declared no competing interest.

Funding Statement

This study was funded by: Canadian Institutes of Health Research: Scott, S.D. (co-PI) & Hartling, L. (co-PI), Ali, S., Currie, G., Dyson, M., Fernandes, R., Fleck, B., Freedman, S., Jabbour, M., Johnson, D., Junker, A., Klassen, T., Maynard, D., Newton, A., Plint, A., Richer, L., Robinson, J., Robson, K., Vandall-Walker, V. [all collaborators listed in alphabetical order]. (2016) Integrating evidence and parent engagement to optimize children's healthcare. CIHR Foundation Scheme ($2,500,000). July 2016-June 2023.

Author Declarations

I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.

Yes

The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

University of Alberta Health Research Ethics Board (Edmonton, Alberta)

I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.

Yes

I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).

Yes

I have followed all appropriate research reporting guidelines and uploaded the relevant EQUATOR Network research reporting checklist(s) and other pertinent material as supplementary files, if applicable.

Yes

Data Availability

All data produced in the present study are available upon reasonable request to the authors

https://echokt.ca/asthma

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