Objectives: The purpose of the present study was to describe experiences of disabilities and factors affecting daily life from the perspective of adult persons with severe-to-profound hearing impairment in combination with severe vision impairment. Furthermore, the study also investigated which kind of support individuals with dual sensory loss received, and their experiences as citizens in the society. Methods: Semi-structured qualitative interviews were performed, analyzed, and categorized using content analysis. Results: Fourteen interviews were performed, with equal number of both sexes. Mean age was 70.1 years (47-81 years). Analysis of the data resulted in 22 categories, six sub-themes and two main themes. Two main themes emerged as Isolation and The Ability to control one's own daily life. Surprisingly, most of the participants did not think of their vision and hearing impairment as a combined disability. The interviews showed various kind of strategies to handle daily life. The Deafblind-team unit was reported to offer excellent health care. Companion services for persons with disabilities proved to have become more difficult to get support from and created lack of independence and control over their own lives. However, it was also obvious that the participants felt a positive outlook on life and more solution-oriented in order to adjust their everyday life to their life-situation. Conclusions: The combination of vision and hearing impairment demonstrated isolation, and the respondents in the study have a need of support in everyday lives. At the same time, they struggle to have the ability to control their own lives.

The authors have declared no competing interest.

Funded studies: STT received grants from: This study was supported by grants from the Stiftelsen Tysta Skolan, Stockholm Mo Gårds Forskningsfond (MoFoF) Stiftelsen Tornspiran Gunnar Arnbrinks Stiftelse, Stockholm Stiftelsen Sigurd och Elsa Goljes Minne via Lindhés Advokatbyrå AB, Stockholm Konung Gustav V:s och Drottning Victorias Frimurarestiftelse, Stockholm. The funders did had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

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The details of the IRB/oversight body that provided approval or exemption for the research described are given below:

This study was approved by the Regional Ethical Review Board, Stockholm (2014/2101-31).

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