Cancers, Vol. 14, Pages 6007: The Reporting, Use, and Validity of Patient-Reported Outcomes in Multiple Myeloma in Clinical Trials: A Systematic Literature Review

#Searches1exp MULTIPLE MYELOMA/2myelom*.tw,kf.3exp Plasmacytoma/4(plasm?cytom* or plasm?zytom* or plasma cytoma*).tw,kf.5(plasma* adj3 neoplas*).tw,kf.6(plasma cell adj1 (leukaem* or leukem* or tumor* or tumour*)).tw,kf.7((plasmacytic* or plasmocytic* or plasmocyte*) adj1 (leukem* or leukaem*)).tw,kf.8kahler*.tw,kf.9or/1-810patient reported outcome measures/11(“EQ-5D” or “EuroQol-5 dimensions” or “EuroQoL-5 EuroQoL-5 D” or “EQ-5D-5L”).tw,kf.12((EORTC or “European Organi?ation for Research and Treatment of Cancer”) and (“Quality of Life” or QoL) and questionnaire*).tw.13((EORTC or “European Organi?ation for Research and Treatment of Cancer”) and (QLQ-MY20 or QLQ-20 or QLQ-C30 or QLQ-30 or QLQ-MY24 or QLQ-24)).tw,kf.14((EORTC or “European Organi?ation for Research and Treatment of Cancer” or questionnaire*) and (“myeloma-specific” or “MM-specific” or “Multiple Myeloma Module” or “MM module”)).tw,kf.15((EORTC or “European Organi?ation for Research and Treatment of Cancer”) and QLQ data).tw,kf.16(QLQ-MY20 or QLQ-C30 or QLQ-MY24).tw,kf.17Medical Outcomes Study.tw,kf.18(36-item Short-form or 36 short verion or SF-36 or MOS-SF-36 or “short-form 36”).tw,kf.19((“Functional Assessment” adj1 “Chronic Illness Therapy”) or (FACIT adj1 fatigue) or “FACIT F” or “FACIT SP*”).tw,kf.20((“Functional Assessment” adj1 “Cancer Therapy”) or “FACT-G” or (FACT adj1 general) or (FACT adj1 BMT) or (FACT adj1 MM) or (FACT adj1 GOG)).tw,kf.21(“Patient-Reported Outcomes Measurement Information System” or PROMIS).tw,kf.22(“Multiple Myeloma Symptom and Impact Questionnaire*” or MySIm-Q).tw,kf.23(“patient global impression of severity” or PGIS or “PGI-S”).tw,kf.24((“Brief Pain Inventory” adj2 (Short Form or SF)) or “BPI-SF”).tw,kf.25(CTSQ or “Cancer Therapy satisfaction questionnaire*”).tw,kf.26((“Patient Reported-Outcome*” or PRO* or “National Cancer Institute*” or NCI*) adj2 “Common Terminology Criteria*” adj2 “Adverse Event*”).tw,kf.27(“PRO-CTCAE*” or “NCI-CTCAE*”).tw,kf.28(“Hospital Anxiety and Depression scale” or HADS).tw,kf.29((“Leeds Assessment” adj2 Neuropathic*) or LANSS*).tw,kf.30(“Patient Outcome Scale” or MyPOS).tw,kf.31(“MD Anderson Symptom Inventory*” or “M.D. Anderson Symptom Inventory*” or MDASI*).tw,kf.32“Medication Adherence Index”.tw,kf.33((“Center for Adherence Support Evaluation” or CASE) adj3 Adherence Index).tw,kf.34“Piper Fatigue Scale*”.tw,kf.35(“system usability*” adj3 (scale* or score* or questionnare*)).tw,kf.36(“Brief Adherence Rating Scale” or BARS).tw,kf.37(“International Physical Activity Questionnaire” or “IPAQ”).tw,kf.38((“Exercise Self-Efficacy” adj2 (scale* or score*)) or “ESES” or “EXSE” or “ESS” or “ESE”).tw,kf.39(assessment adj2 “quality of life” adj2 (6D or “6 dimensions”)).tw,kf.40AQoL-6D*.tw,kf.41((“Adherence Starts with Knowledge” or ASK) adj2 (score* or scale*)).tw,kf.42(FACT adj1 GOG).tw,kf.43or/10-4244“Quality of Life”/45Personal Satisfaction/46Patient Satisfaction/47“Activities of Daily Living”/48Quality-Adjusted Life Years/49Personal Autonomy/50Happiness/51Self Concept/52Family Relations/53Religion/54Social Support/55Financial Support/56or/44-5557(“Quality of life” or “Life quality” or “personal satisfaction” or “patient satisfaction” or “Activities of Daily Living” or “Quality adjusted life year*” or “Personal autonomy” or “Happiness” or “Patient preference*” or “fear of death” or “Self-concept” or “family relation*” or religion or “social support” or “financial support” or “positive experience”).tw,kf.5856 or 5759VALIDATION STUDIES AS TOPIC/60validation study.pt.61(validity or validated or validation or validate or valid).tw,kf.62(reliable or reliability or rely or relied or reliably).tw.63psychometrics/64(“minimally important difference*” or “responder definition*”).tw,kf.65(Cronbachs alpha* or psychometric* or psycho-metric*).tw,kf.66or/59-65679 and (43 or 58) and 66

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