Transition in endocrinology: predictors of drop-out of a heterogeneous population on a long-term follow-up

Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions. a position paper of the society for adolescent medicine. J Adolesc Health 14:570–576. https://doi.org/10.1016/1054-139X(93)90143-D

Article  CAS  PubMed  Google Scholar 

Becker J, Ravens E, Pape L, Ernst G (2020) Somatic outcomes of young people with chronic diseases participating in transition programs: a systematic review. J Transit Med 2:1–10. https://doi.org/10.1515/jtm-2020-0003

Article  Google Scholar 

Crowley R, Wolfe I, Lock K, McKee M (2011) Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 96:548–553. https://doi.org/10.1136/adc.2010.202473

Article  CAS  PubMed  Google Scholar 

Alassaf A, Gharaibeh L, Grant C, Punthakee Z (2017) Predictors of type 1 diabetes mellitus outcomes in young adults after transition from pediatric care. J Diabetes 9:1058–1064. https://doi.org/10.1111/1753-0407.12536

Article  CAS  PubMed  Google Scholar 

Cadario F, Prodam F, Bellone S, Trada M, Binotti M, Trada M, Allochis G, Baldelli R, Esposito S, Bona G, Aimaretti G (2009) Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf) 71:346–350. https://doi.org/10.1111/j.1365-2265.2008.03467.x

Article  CAS  PubMed  Google Scholar 

Monaghan M, Hilliard M, Sweenie R, Riekert K (2013) Transition readiness in adolescents and emerging adults with diabetes: the role of patient-provider communication. Curr Diab Rep 13:900–908. https://doi.org/10.1007/s11892-013-0420-x

Article  PubMed  Google Scholar 

Kapellen TM, Kiess W (2015) Transition of adolescents and young adults with endocrine diseases to adult health care. Best Pract Res Clin Endocrinol Metab 29:505–513. https://doi.org/10.1016/j.beem.2015.03.005

Article  PubMed  Google Scholar 

Lotstein DS, Seid M, Klingensmith G, Case D, Lawrence JM, Pihoker C, Dabelea D, Mayer-Davis EJ, Gilliam LK, Corathers S, Imperatore G, Dolan L, Anderson A, Bell RA, Waitzfelder B, SEARCH for diabetes in youth study group (2013) Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Pediatrics 131:1062–1070. https://doi.org/10.1542/peds.2012-1450

Article  Google Scholar 

Petzold S, Keller A, Keller E, Meigen C, Hirsch W, Kratzsch J et al (2008) A prismatic case: A 31-year old man who did not miss his pituitary. Hormones 7:263–270

Article  PubMed  Google Scholar 

Molitch ME, Clemmons DR, Malozowski S, Merriam GR, Vance ML (2011) Evaluation and treatment of adult growth hormone deficiency: An endocrine society clinical practice guideline. J Clin Endocrinol Metab 96:1587–1609. https://doi.org/10.1210/jc.2011-0179

Article  CAS  PubMed  Google Scholar 

Hanley P, Lord K, Bauer AJ (2016) Thyroid disorders in children and adolescents: a review. JAMA Pediatr 170:1008–1019. https://doi.org/10.1001/jamapediatrics.2016.0486

Article  PubMed  Google Scholar 

Hokken-Koelega A, van der Lely AJ, Hauffa B, Häusler G, Johannsson G, Maghnie M, Argente J, DeSchepper J, Gleeson H, Gregory JW, Höybye C, Keleştimur F, Luger A, Müller HL, Neggers S, Popovic-Brkic V, Porcu E, Sävendahl L, Shalet S, Spiliotis B, Tauber M (2016) Bridging the gap: metabolic and endocrine care of patients during transition. Endocr Connect 5:R44–R54. https://doi.org/10.1530/ec-16-0028

Article  PubMed  PubMed Central  Google Scholar 

Rutishauser C, Sawyer SM, Ambresin AE (2014) Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care. Eur J Pediatr 173:1067–1074. https://doi.org/10.1007/s00431-014-2291-9

Article  PubMed  Google Scholar 

Downing J, Gleeson HK, Clayton PE, Davis JRE, Wales JK, Callery P (2013) Transition in endocrinology: The challenge of maintaining continuity. Clin Endocrinol (Oxf) 78:29–35. https://doi.org/10.1111/j.1365-2265.2012.04473.x

Article  PubMed  Google Scholar 

Oeffinger KC, Mertens AC, Sklar CA (2007) Chronic health conditions in adult survivors of childhood cancer. Oncol Times 29:26. https://doi.org/10.1056/nejmsa060185

Article  Google Scholar 

Bondy CA, Bakalov VK (2006) Investigation of cardiac status and bone mineral density in Turner syndrome. Growth Horm IGF Res 16:103–108. https://doi.org/10.1016/j.ghir.2006.03.008

Article  Google Scholar 

Lanfranco F, Kamischke A, Zitzmann M, Nieschlag E (2004) Klinefelter’s syndrome. Lancet 364:273–283. https://doi.org/10.1016/S0140-6736(04)16678-6

Article  CAS  PubMed  Google Scholar 

Cannavò S, Cappa M, Ferone D, Isidori AM, Loche S, Salerno M, Maghnie M, Delphi panel members (paediatric, adult endocrinologists) (2022) Appropriate management of growth hormone deficiency during the age of transition: an Italian Delphi consensus statement. J Endocrinol Invest. https://doi.org/10.1007/s40618-022-01880-w

Article  PubMed  PubMed Central  Google Scholar 

Le Roux E, Menesguen F, Tejedor I, Popelier M, Halbron M, Faucher P, Malivoir S, Pinto G, Léger J, Hatem S, Polak M, Poitou C, Touraine P (2021) Transition of young adults with endocrine and metabolic diseases: the ‘TRANSEND’ cohort. Endocr Connect 10:21–28

Article  PubMed  Google Scholar 

Suris JC, Akre C (2015) Key elements for, and indicators of, a successful transition: An international delphi study. J Adolesc Heal 56:612–618. https://doi.org/10.1016/j.jadohealth.2015.02.007

Article  Google Scholar 

Pedreira CC, Hameed R, Kanumakala S, Zacharin M (2006) Health-care problems of Turner syndrome in the adult woman: a cross sectional study of a victorian cohort and a case for transition. Intern Med J 36:54–57. https://doi.org/10.1111/j.1445-5994.2005.00990.x

Article  CAS  PubMed  Google Scholar 

Atger-Lallier L, Guilmin-Crepon S, Boizeau P, Zenaty D, Simon D, Paulsen A, Martinerie L, Storey C, Carel J, Léger J (2019) Factors affecting loss to follow-up in children and adolescents with chronic endocrine conditions. Horm Res Paediatr 92:254–261. https://doi.org/10.1159/000505517

Article  CAS  PubMed  Google Scholar 

Campanini MG (2017) L’ipotiroidismo. Ital J Med 5:7–9. https://doi.org/10.4081/itjm.q.2017.3

Article  Google Scholar 

Giannouli V, Syrmos N (2017) Exploring attitudes towards endocrine diseases in Greece. Endocrine 55:655–657. https://doi.org/10.1007/s12020-016-1164-6

Article  CAS  PubMed  Google Scholar 

Sbardella E, Pozza C, Isidori AM, Grossman AB (2019) Endocrinology and adolescence: dealing with transition in young patients with pituitary disorders. Eur J Endocrinol 181:R155–R171. https://doi.org/10.1530/eje-19-0298

Article  CAS  PubMed  Google Scholar 

Syed IA, Nathan PC, Barr R, Rosenberg-Yunger ZRS, D’Agostino NM, Klassen AF (2016) Examining factors associated with self-management skills in teenage survivors of cancer. J Cancer Surviv 10:686–691. https://doi.org/10.1007/s11764-016-0514-y

Article  PubMed  Google Scholar 

Mostoufi-Moab S, Seidel K, Leisenring WM, Armstrong GT, Oeffinger KC, Stovall M, Meacham LR, Green DM, Weathers R, Ginsberg JP, Robison LL, Sklar CA (2016) Endocrine abnormalities in aging survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol 34:3240–3247. https://doi.org/10.1200/jco.2016.66.6545

Article  PubMed  PubMed Central  Google Scholar 

Ruggeri RM, Trimarchi F, Giuffrida G, Certo R, Cama E, Campennì A, Alibrandi A, De Luca F, Wasniewska M (2017) Autoimmune comorbidities in Hashimoto’s thyroiditis: different patterns of association in adulthood and childhood/adolescence. Eur J Endocrinol 176:133–141. https://doi.org/10.1530/eje-16-0737

Article  CAS  PubMed  Google Scholar 

留言 (0)

沒有登入
gif