Psychosocial Assessment Tools for Youth with Type 1 Diabetes: a 10-Year Review

Beck RW, Bergenstal RM, Riddlesworth TD, Kollman C, Li Z, Brown AS, et al. Validation of time in range as an outcome measure for diabetes clinical trials. Diabetes Care. 2019;42(3):400–5. https://doi.org/10.2337/dc18-1444.

Article  CAS  PubMed  Google Scholar 

Wood JR, Miller KM, Maahs DM, Beck RW, DiMeglio LA, Libman IM, et al. Most youth with type 1 diabetes in the T1D Exchange Clinic Registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines. Diabetes Care. 2013;36(7):2035–7. https://doi.org/10.2337/dc12-1959.

Article  PubMed Central  PubMed  Google Scholar 

Sherr J, Schwandt A, Phelan H, Clements MA, Holl RW, Benitez-Aguirre PZ, et al. 1580-P: hemoglobin A1c (HbA1c) trajectories of youth with type 1 diabetes (T1D) over 10 years postdiagnosis from three continents. Diabetes. 2020;69(Supplement 1):1580-P. https://doi.org/10.2337/db20-1580-P.

Article  Google Scholar 

Weinger K, de Groot M, Cefalu WT. Psychosocial research and care in diabetes: altering lives by understanding attitudes. Diabetes Care. 2016;39(12):2122. https://doi.org/10.2337/dc16-2056.

Article  PubMed Central  PubMed  Google Scholar 

Young-Hyman D, de Groot M, Hill-Briggs F, Gonzalez JS, Hood K, Peyrot M. Psychosocial care for people with diabetes: a position statement of the American Diabetes Association. Diabetes Care. 2016;39(12):2126. https://doi.org/10.2337/dc16-2053.

Article  CAS  PubMed Central  PubMed  Google Scholar 

American Diabetes Association. 4. Lifestyle management: standards of medical care in diabetes-2018. Diabetes Care. 2018;41(Suppl 1):S38–50. https://doi.org/10.2337/dc18-S004.

Article  Google Scholar 

Corathers SD, Mara CA, Chundi PK, Kichler JC. Psychosocial patient-reported outcomes in pediatric and adolescent diabetes: a review and case example. Curr Diab Rep. 2017;17(7):45.

Article  PubMed  Google Scholar 

• Marrero DG, Hilliard ME, Maahs DM, McAuliffe-Fogarty AH, Hunter CM. Using patient reported outcomes in diabetes research and practice: recommendations from a national workshop. Diabetes Res Clin Pract. 2019;153:23–9. Provides recommendations and outlines the importance of using patient-reported and psychosocial outcomes for diabetes care and research.

Article  PubMed  Google Scholar 

• de Wit M, Versloot J, Zenlea I, Goethals ER. Using person-reported outcomes (PROs) to motivate young people with diabetes. Curr Diab Rep. 2020;20(7):23. Gives insight into how using patient-reported and psychosocial outcomes can be effective for motivating youth with diabetes.

Article  PubMed Central  PubMed  Google Scholar 

• Skovlund SE, Lichtenberg TH, Hessler D, Ejskjaer N. Can the routine use of patient-reported outcome measures improve the delivery of person-centered diabetes care? A review of recent developments and a case study. Curr Diab Rep. 2019;19(9):84. Reviews developments of patient-reported and psychosocial outcomes toward diabetes care and offers recommendations for future research in this area.

Article  PubMed  Google Scholar 

Neylon OM, O’Connell MA, Skinner TC, Cameron FJ. Demographic and personal factors associated with metabolic control and self-care in youth with type 1 diabetes: a systematic review. Diabetes Metab Res Rev. 2013;29(4):257–72. https://doi.org/10.1002/dmrr.2392.

Article  PubMed  Google Scholar 

Martinez K, Frazer SF, Dempster M, Hamill A, Fleming H, McCorry NK. Psychological factors associated with diabetes self-management among adolescents with Type 1 diabetes: A systematic review. J Health Psychol. 2018;23(13):1749–65. https://doi.org/10.1177/1359105316669580.

Article  PubMed  Google Scholar 

Ellis M, Jayarajah C. Adolescents’ view and experiences of living with type 1 diabetes. Nurs Child Young People. 2016;28(6):28–34. https://doi.org/10.7748/ncyp.2016.e727.

Article  PubMed  Google Scholar 

Whittemore R, Jaser S, Guo J, Grey M. A conceptual model of childhood adaptation to type 1 diabetes. Nurs Outlook. 2010;58(5):242–51. https://doi.org/10.1016/j.outlook.2010.05.001.

Article  PubMed Central  PubMed  Google Scholar 

Hilliard ME, Harris MA, Weissberg-Benchell J. Diabetes resilience: a model of risk and protection in type 1 diabetes. Curr Diab Rep. 2012;12(6):739–48. https://doi.org/10.1007/s11892-012-0314-3.

Article  PubMed  Google Scholar 

Helgeson VS, Honcharuk E, Becker D, Escobar O, Siminerio L. A focus on blood glucose monitoring: relation to glycemic control and determinants of frequency. Pediatr Diabetes. 2011;12(1):25–30. https://doi.org/10.1111/j.1399-5448.2010.00663.x.

Article  PubMed Central  PubMed  Google Scholar 

Schneider S, Iannotti RJ, Nansel TR, Haynie DL, Sobel DO, Simons-Morton B. Assessment of an illness-specific dimension of self-esteem in youths with type 1 diabetes. J Pediatr Psychol. 2009;34(3):283–93. https://doi.org/10.1093/jpepsy/jsn078.

Article  PubMed  Google Scholar 

Van Allen J, Steele RG, Nelson MB, Peugh J, Egan A, Clements M, et al. A longitudinal examination of hope and optimism and their role in type 1 diabetes in youths. J Pediatr Psychol. 2016;41(7):741–9. https://doi.org/10.1093/jpepsy/jsv113.

Article  PubMed  Google Scholar 

Powell PW, Hilliard ME, Anderson BJ. Motivational interviewing to promote adherence behaviors in pediatric type 1 diabetes. Curr Diab Rep. 2014;14(10):531. https://doi.org/10.1007/s11892-014-0531-z.

Article  CAS  PubMed Central  PubMed  Google Scholar 

Chiang JL, Maahs DM, Garvey KC, Hood KK, Laffel LM, Weinzimer SA, et al. Type 1 diabetes in children and adolescents: a position statement by the American Diabetes Association. Diabetes Care. 2018:dci180023. https://doi.org/10.2337/dci18-0023.

Borus JS, Laffel L. Adherence challenges in the management of type 1 diabetes in adolescents: prevention and intervention. Curr Opin Pediatr. 2010;22(4):405–11. https://doi.org/10.1097/MOP.0b013e32833a46a7.

Article  PubMed Central  PubMed  Google Scholar 

Skinner TC, Howells L, Greene S, Edgar K, McEvilly A, Johansson A. Development, reliability and validity of the Diabetes Illness Representations Questionnaire: four studies with adolescents. Diabet Med. 2003;20(4):283–9. https://doi.org/10.1046/j.1464-5491.2003.00923.x.

Article  CAS  PubMed  Google Scholar 

Gonder-Frederick L, Nyer M, Shepard JA, Vajda K, Clarke W. Assessing fear of hypoglycemia in children with Type 1 diabetes and their parents. Diabetes Manag (Lond). 2011;1(6):627–39. https://doi.org/10.2217/dmt.11.60.

Article  PubMed  Google Scholar 

Hagger V, Hendrieckx C, Sturt J, Skinner TC, Speight J. Diabetes distress among adolescents with type 1 diabetes: a systematic review. Curr Diab Rep. 2016;16(1):9. https://doi.org/10.1007/s11892-015-0694-2.

Article  PubMed  Google Scholar 

Anderson B, Ho J, Brackett J, Finkelstein D, Laffel L. Parental involvement in diabetes management tasks: relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. J Pediatr. 1997;130(2):257–65.

Article  CAS  PubMed  Google Scholar 

Jackson CC, Albanese-O’Neill A, Butler KL, Chiang JL, Deeb LC, Hathaway K, et al. Diabetes care in the school setting: a position statement of the American Diabetes Association. Diabetes Care. 2015;38(10):1958–63.

Article  PubMed  Google Scholar 

Croom A, Wiebe DJ, Berg CA, Lindsay R, Donaldson D, Foster C, et al. Adolescent and parent perceptions of patient-centered communication while managing type 1 diabetes. J Pediatr Psychol. 2011;36(2):206–15.

Article  PubMed  Google Scholar 

DeMars MM, Perruso C. MeSH and text-word search strategies: precision, recall, and their implications for library instruction. J Med Libr Assoc. 2022. https://doi.org/10.5195/jmla.2022.1283.

Article  PubMed Central  PubMed  Google Scholar 

• Anderson LM, Papadakis JL, Vesco AT, Shapiro JB, Feldman MA, Evans MA, et al. Patient-reported and parent proxy-reported outcomes in pediatric medical specialty clinical settings: a systematic review of implementation. J Pediatr Psychol. 2020;45(3):247–65. https://doi.org/10.1093/jpepsy/jsz082. Reviews psychosocial assessment tools and offers recommendations for using well-validated and evidence-based instruments.

Article  PubMed  Google Scholar 

Clark LA, Watson D. Constructing validity: new developments in creating objective measuring instruments. Psychol Assess. 2019;31(12):1412–27.

Article  PubMed Central  PubMed  Google Scholar 

Buchberger B, Huppertz H, Krabbe L, Lux B, Mattivi JT, Siafarikas A. Symptoms of depression and anxiety in youth with type 1 diabetes: a systematic review and meta-analysis. Psychoneuroendocrinology. 2016;70:70–84. https://doi.org/10.1016/j.psyneuen.2016.04.019.

Article  PubMed  Google Scholar 

Pereira EV, Tonin FS, Carneiro J, Pontarolo R, Wiens A. Evaluation of the application of the Diabetes Quality of Life Questionnaire in patients with diabetes mellitus. Arch Endocrinol Metab. 2020;64(1):59–65. https://doi.org/10.20945/2359-3997000000196.

Article  PubMed  Google Scholar 

Hill-Briggs F, Adler NE, Berkowitz SA, Chin MH, Gary-Webb TL, Navas-Acien A, et al. Social determinants of health and diabetes: a scientific review. Diabetes Care. 2020;44(1):258–79.

Article  PubMed Central  PubMed  Google Scholar 

Iannotti RJ, Schneider S, Nansel TR, Haynie DL, Plotnick LP, Clark LM, et al. Self-efficacy, outcome expectations, and diabetes self-management in adolescents with type 1 diabetes. J Devel Behav Pediatr. 2006;27(2). https://doi.org/10.1097/00004703-200604000-00003.

Grossman HY, Brink S, Hauser ST. Self-efficacy in adolescent girls and boys with insulin-dependent diabetes mellitus. Diabetes Care. 1987;10(3):324. https://doi.org/10.2337/diacare.10.3.324.

Article  CAS  PubMed  Google Scholar 

Schwarzer R, Jerusalem M. General Self-Efficacy scale. In Weinman J, Wright S, Johnston, Measures in health psychology: a user’s portfolio. Casual Control Beliefs. 1995;35–37. https://doi.org/10.1037/t00393-000.

•• Özçelik ÇÇ, Aktaş E, Celasin NŞ, Okuroğlu GK, Şahin Ş. The development and validation of a Turkish insulin treatment self-management scale child form (ages 8–18) and parent form. J Clin Res Pediatr Endocrinol. 2019;11(3):278–86. https://doi.org/10.4274/jcrpe.galenos.2019.2019.0026. This study developed and validated the insulin treatment self-management scale to assess the cognitive and emotional aspects of insulin treatment for children with type 1 diabetes.

Article  Google Scholar 

Rasbach LE, Volkening LK, Markowitz JT, Butler DA, Katz ML, Laffel LM. Youth and parent measures of self-efficacy for continuous glucose monitoring: survey psychometric properties. Diabetes Technol Ther. 2015;17(5):327–34. https://doi.org/10.1089/dia.2014.0366.

Article  CAS  PubMed Central  PubMed  Google Scholar 

Schneider S, Iannotti RJ, Nansel TR, Haynie DL, Sobel DO, Simons-Morton B. Assess

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