Assessing the psychometric performance of EQ-5D-5L in dementia: a systematic review

Sopina E, Sørensen J. Decision modelling of non-pharmacological interventions for individuals with dementia: a systematic review of methodologies. Heal Econ Rev. 2018;8:1–12.

Google Scholar 

O’Shea E, Hopper L, Marques M, Gonçalves-Pereira M, Woods B, Jelley H, Verhey F, Kerpershoek L, Wolfs C, de Vugt M. A comparison of self and proxy quality of life ratings for people with dementia and their carers: a European prospective cohort study. Aging Ment Health. 2020;24:162–70.

PubMed  Article  Google Scholar 

National Insititute for Health and Care Excellence: NICE technology evaluations: the manual vol. Process and methods [PMG36]: NICE; 2022.

Brooks R, Group E. EuroQol: the current state of play. Health Policy. 1996;37:53–72.

CAS  PubMed  Article  Google Scholar 

Herdman M, Gudex C, Lloyd A, Janssen M, Kind P, Parkin D, Bonsel G, Badia X. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011;20:1727–36.

CAS  PubMed  PubMed Central  Article  Google Scholar 

Pickard AS, Knight SJ. Proxy evaluation of health-related quality of life: a conceptual framework for understanding multiple proxy perspectives. Med Care. 2005;43:493.

PubMed  PubMed Central  Article  Google Scholar 

Li L, Nguyen K-H, Comans T, Scuffham P. Utility-based instruments for people with dementia: a systematic review and meta-regression analysis. Value Health. 2018;21:471–81.

PubMed  Article  Google Scholar 

Mulhern B, Rowen D, Brazier J, Smith S, Romeo R, Tait R, Watchurst C, Chua K-C, Loftus V, Young T, Lamping D, Knapp M, Howard R, Banerjee S. Development of DEMQOL-U and DEMQOL-PROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation. Health Technol Assess. 2013;17(5):1–140. https://doi.org/10.3310/hta17050.

Article  Google Scholar 

Feeny D, Furlong W, Torrance GW, Goldsmith CH, Zhu Z, DePauw S, Denton M, Boyle M. Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Med Care. 2002;40:113–28.

PubMed  Article  Google Scholar 

Kaplan RM, Anderson JP, Ganiats TG. The quality of well-being scale: rationale for a single quality of life index. In: Walker SR, Rosser RM, editors. Quality of life assessment: key issues in the 1990s. Dordrecht: Springer; 1993. p. 65–94.

Chapter  Google Scholar 

Richardson J, Iezzi A, Khan MA, Maxwell A. Validity and reliability of the assessment of quality of life (AQoL)-8D multi-attribute utility instrument. Patient-Patient-Centered Outcomes Res. 2014;7:85–96.

Article  Google Scholar 

Engel L, Bucholc J, Mihalopoulos C, Mulhern B, Ratcliffe J, Yates M, Hanna L. A qualitative exploration of the content and face validity of preference-based measures within the context of dementia. Health Qual Life Outcomes. 2020;18:178.

PubMed  PubMed Central  Article  Google Scholar 

Feng Y-S, Kohlmann T, Janssen MF, Buchholz I. Psychometric properties of the EQ-5D-5L: a systematic review of the literature. Qual Life Res. 2021;30:647–73.

PubMed  Article  Google Scholar 

Easton T, Milte R, Crotty M, Ratcliffe J. An empirical comparison of the measurement properties of the EQ-5D-5L, DEMQOL-U and DEMQOL-Proxy-U for older people in residential care. Qual Life Res. 2018;27:1283–94.

PubMed  PubMed Central  Article  Google Scholar 

Griffin XL, Costa ML, Phelps E, Parsons N, Dritsaki M, Png ME, Achten J, Tutton E, Lerner R, McGibbon A, Baird J. Retrograde intramedullary nail fixation compared with fixed-angle plate fixation for fracture of the distal femur: the TrAFFix feasibility RCT. Health Technol Assess. 2019;23:1–132.

PubMed  PubMed Central  Article  Google Scholar 

Harrison SL, Kouladjian O’Donnell L, Bradley CE, Milte R, Dyer SM, Gnanamanickam ES, Liu E, Hilmer SN, Crotty M. Associations between the drug burden index, potentially inappropriate medications and quality of life in residential aged care. Drugs Aging. 2018;35:83–91.

PubMed  Article  Google Scholar 

Longworth L, Yang Y, Young T, Mulhern B, Alava MH, Mukuria C, Rowen D, Tosh J, Tsuchiya A, Evans P, Keetharuth AD, Brazier J. Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey. Health Technol Assess. 2014. https://doi.org/10.3310/hta18090.

Article  PubMed  PubMed Central  Google Scholar 

Cohen J. Statistical power analysis for the behavior science. Lawrance Eribaum Association 1988.

Fitzpatrick R, Davey C, Buxton MJ, Jones DR. Evaluating patient-based outcome measures for use in clinical trials. Health Technol Asses. 1998. https://doi.org/10.3310/hta2140.

Article  Google Scholar 

McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res. 1995;4:293–307.

CAS  PubMed  Article  Google Scholar 

Toh HJ, Yap P, Wee SL, Koh G, Luo N. Feasibility and validity of EQ-5D-5L proxy by nurses in measuring health-related quality of life of nursing home residents. Qual Life Res. 2020;16:16.

Google Scholar 

Meader N, King K, Llewellyn A, Norman G, Brown J, Rodgers M, Moe-Byrne T, Higgins J, Sowden A, Stewart G. A checklist designed to aid consistency and reproducibility of GRADE assessments: development and pilot validation. Syst Rev. 2014;3:1–9.

Article  Google Scholar 

Handels RLH, Skoldunger A, Bieber A, Edwards RT, Goncalves-Pereira M, Hopper L, Irving K, Jelley H, Kerpershoek L, Marques MJ, et al. Quality of life, care resource use, and costs of dementia in 8 European countries in a cross-sectional cohort of the actifcare study. J Alzheimers Dis. 2018;66:1027–40.

PubMed  Article  Google Scholar 

Janssen N, Handels RL, Skoldunger A, Woods B, Jelley H, Edwards RT, Orrell M, Selbaek G, Rosvik J, Goncalves-Pereira M, et al. Impact of untimely access to formal care on costs and quality of life in community dwelling people with dementia. J Alzheimers Dis. 2018;66:1165–74.

PubMed  Article  Google Scholar 

Perry-Duxbury M, van Exel J, Brouwer W, Skoldunger A, Goncalves-Pereira M, Irving K, Meyer G, Selbaek G, Woods B, Zanetti O, et al. A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries. Qual Life Res. 2020;29:237–51.

PubMed  Article  Google Scholar 

Rombach I, Iftikhar M, Jhuti GS, Gustavsson A, Lecomte P, Belger M, Handels R, Castro Sanchez AY, Kors J, Hopper L, et al. Obtaining EQ-5D-5L utilities from the disease specific quality of life Alzheimer’s disease scale: development and results from a mapping study. Qual Life Res. 2020;17:17.

Google Scholar 

Griffiths AW, Smith SJ, Martin A, Meads D, Kelley R, Surr CA. Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes. Qual Life Res. 2020;29:463–72.

PubMed  Article  Google Scholar 

Martin A, Meads D, Griffiths AW, Surr CA. How should we capture health state utility in dementia? Comparisons of DEMQOL-proxy-U and of self- and proxy-completed EQ-5D-5L. Value Health. 2019;22:1417–26.

PubMed  Article  Google Scholar 

Meads DM, Martin A, Griffiths A, Kelley R, Creese B, Robinson L, McDermid J, Walwyn R, Ballard C, Surr CA. Cost-effectiveness of dementia care mapping in care-home settings: evaluation of a randomised controlled trial. Appl Health Econ Health Policy. 2020;18:237–47.

PubMed  Article  Google Scholar 

Umegaki H, Bonfiglio V, Komiya H, Watanabe K, Kuzuya M. Association between sarcopenia and quality of life in patients with early dementia and mild cognitive impairment. J Alzheimers Dis. 2020;76:435–42.

PubMed  Article  Google Scholar 

Maidment ID, Barton G, Campbell N, Shaw R, Seare N, Fox C, Iliffe S, Randle E, Hilton A, Brown G, et al. MEDREV (pharmacy-health psychology intervention in people living with dementia with behaviour that challenges): the feasibility of measuring clinical outcomes and costs of the intervention. BMC Health Serv Res. 2020;20:157.

PubMed  PubMed Central  Article  Google Scholar 

Van Hout B, Janssen M, Feng Y-S, Kohlmann T, Busschbach J, Golicki D, Lloyd A, Scalone L, Kind P, Pickard AS. Interim scoring for the EQ-5D-5L: mapping the EQ-5D-5L to EQ-5D-3L value sets. Value Health. 2012;15:708–15.

PubMed  Article  Google Scholar 

Devlin NJ, Shah KK, Feng Y, Mulhern B, van Hout B. Valuing health-related quality of life: an EQ-5 D-5 L value set for England. Health Econ. 2018;27:7–22.

PubMed  Article  Google Scholar 

Sopina E, Chenoweth L, Luckett T, Agar M, Luscombe GM, Davidson PM, Pond CD, Phillips J, Goodall S. Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments. Qual Life Res. 2019;28:121–9.

PubMed  Article  Google Scholar 

Sopina E, Sorensen J, Beyer N, Hasselbalch SG, Waldemar G. Cost-effectiveness of a randomised trial of physical activity in Alzheimer’s disease: a secondary analysis exploring patient and proxy-reported health-related quality of life measures in Denmark. BMJ Open. 2017;7:e015217.

PubMed  PubMed Central  Article  Google Scholar 

Ratcliffe J, Flint T, Easton T, Killington M, Cameron I, Davies O, Whitehead C, Kurrle S, Miller M, Liu E, Crotty M. An empirical comparison of the EQ-5D-5L, DEMQOL-U and DEMQOL-Proxy-U in a post-hospitalisation population of frail older people living in residential aged care. Appl Health Econ Health Policy. 2017;15:399–412.

PubMed  Article  Google Scholar 

van de Rijt LJ, Feast AR, Vickerstaff V, Lobbezoo F, Sampson EL. Prevalence and associations of orofacial pain and oral health factors in nursing home residents with and without dementia. Age Ageing. 2020;49:418–24.

PubMed  Article  Google Scholar 

Weiner MF, Martin-Cook K, Svetlik DA, Saine K, Foster B, Fontaine C. The quality of life in late-stage dementia (QUALID) scale. J Am Med Dir Assoc. 2000;1:114–6.

CAS  PubMed  Google Scholar 

Flynn TN, Chan P, Coast J, Peters TJ. Assessing quality of life among British older people using the ICEPOP CAPability (ICECAP-O) measure. Appl Health Econ Health Policy. 2011;9:317–29.

PubMed  Article  Google Scholar 

Usman A, Lewis S, Hinsliff-Smith K, Long A, Housley G, Jordan J, Gage H, Dening T, Gladman JRF, Gordon AL. Measuring health-related quality of life of care home residents: comparison of self-report with staff proxy responses. Age Ageing. 2019;48:407–13.

PubMed  PubMed Central  Article  Google Scholar 

Jurkeviciute M, van Velsen L, Trimarchi PD, Sarvari L, Giunco F. An Italian business case for an eHealth platform to provide remote monitoring and coaching services for elderly with mild cognitive impairment and mild Dementia. 2019.

Hurley MV, Wood J, Smith R, Grant R, Jordan J, Gage H, Anderson LW, Kennedy B, Jones F. The feasibility of increasing physical activity in care home residents: active residents in care homes (ARCH) programme. Physiotherapy. 2020;107:50–7.

留言 (0)

沒有登入
gif