Translation, Cultural Adaptation, Reliability, and Validity Evidence of the Feeding/Swallowing Impact Survey (FS–IS) to Brazilian Portuguese

Lefton-Greif MA. Pediatric dysphagia. Phys Med Rehabil Clin N Am. 2008;19(4):837–51. https://doi.org/10.1016/j.pmr.2008.05.007.

Article  PubMed  Google Scholar 

Arvedson JC. Assessment of pediatric dysphagia and feeding disorders: clinical and instrumental approaches. Dev Disabil Res Rev. 2008;14(2):118–27. https://doi.org/10.1002/ddrr.17.

Article  PubMed  Google Scholar 

Lau C. Development of infant oral feeding skills: what do we know? Am J Clin Nutr. 2016;103(2):616s–21s. https://doi.org/10.3945/ajcn.115.109603.

CAS  Article  PubMed  PubMed Central  Google Scholar 

Pagliaro CL, Bühler KE, Ibidi SM, Limongi SC. Dietary transition difficulties in preterm infants: critical literature review. J Pediatr (Rio J). 2016;92(1):714. https://doi.org/10.1016/j.jped.2015.

Article  Google Scholar 

Lefton-Greif MA, Arvedson JC. Pediatric feeding/swallowing: yesterday, today, and tomorrow. Semin Speech Lang. 2016;37(4):298–309. https://doi.org/10.1055/s-0036-1587702.

Article  PubMed  Google Scholar 

Brasil Ministério da Saúde. Guia Alimentar para crianças brasileiras menores de 2 anos. Brasília: Ministério da Saúde; 2019.

Google Scholar 

Alderman H, Fernald L. The nexus between nutrition and early childhood development. Annu Rev Nutr. 2017;37:447–76. https://doi.org/10.1146/annurev-nutr-071816-064627.

CAS  Article  PubMed  Google Scholar 

Boesch RP, Daines C, Willging JP, et al. Advances in the diagnosis and management of chronic pulmonary aspiration in children. Eur Respir J. 2006;28(4):847–61. https://doi.org/10.1183/09031936.06.00138305.

CAS  Article  PubMed  Google Scholar 

Dewey KG, Begum K. Long-term consequences of stunting in early life. Matern Child Nutr. 2011;7(Suppl 3):5–18. https://doi.org/10.1111/j.1740-8709.2011.00349.x.

Article  PubMed  PubMed Central  Google Scholar 

Martins VJ, Toledo Florêncio TM, Grillo LP, et al. Long-lasting effects of undernutrition. Int J Environ Res Public Health. 2011;8(6):1817–46. https://doi.org/10.3390/ijerph8061817.

Article  PubMed  PubMed Central  Google Scholar 

Arvedson JC, Lefton-Greif MA. Overview of diagnosis and treatment. In: Arvedson JC, Brodsky L, Lefton-Greif MA, editors. Pediatric swallowing and feeding: assessment and management. 3rd ed. San Diego: Plural Publishing Inc; 2020. p. 1–10.

Google Scholar 

Greer AJ, Gulotta CS, Masler EA, Laud RB. Caregiver stress and outcomes of children with pediatric feeding disorders treated in an intensive interdisciplinary program. J Pediatr Psychol. 2008;33(6):612–20. https://doi.org/10.1093/jpepsy/jsm116.

Article  PubMed  Google Scholar 

Hewetson R, Singh S. The lived experience of mothers of children with chronic feeding and/or swallowing difficulties. Dysphagia. 2009;24(3):322–32. https://doi.org/10.1007/s00455-009-9210-.

Article  PubMed  Google Scholar 

Craig GM, Scambler G, Spitz L. Why parents of children with neurodevelopmental disabilities requiring gastrostomy feeding need more support. Dev Med Child Neurol. 2003;45(3):183–8. https://doi.org/10.1017/s0012162203000355.

Article  PubMed  Google Scholar 

Sherman V, Greco E, Moharir M, Beal D, Thorpe K, Martino R. Feeding and swallowing impairment in children with stroke and unilateral cerebral palsy: a systematic review. Dev Med Child Neurol. 2019;61(7):761–9. https://doi.org/10.1111/dmcn.14094.

Article  PubMed  Google Scholar 

Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, O’Donnell M, Rosenbaum P. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2):e182-191. https://doi.org/10.1542/peds.114.2.e182.

Article  PubMed  Google Scholar 

Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair. 2005;19(3):232–7. https://doi.org/10.1177/1545968305278857.

Article  PubMed  Google Scholar 

Lefton-Greif MA, Okelo SO, Wright JM, Collaco JM, McGrath-Morrow SA, Eakin MN. Impact of children’s feeding/swallowing problems: validation of a new caregiver instrument. Dysphagia. 2014;29(6):671–7. https://doi.org/10.1007/s00455-014-9560-7.

Article  PubMed  PubMed Central  Google Scholar 

Serel Arslan S, Kılınç H, Yaşaroğlu Ö, İnal Ö, Demir N, Karaduman A. Reliability and validity of the turkish version of the feeding/swallowing impact survey. J Dev Phys Disabil. 2018. https://doi.org/10.1007/s10882-018-9615-z.

Article  Google Scholar 

Fracchia MS, Diercks G, Yamasaki A, Hersh C, Hardy S, Hartnick M, Hartnick C. Assessment of the feeding Swallowing Impact Survey as a quality of life measure in children with laryngeal cleft before and after repair. Int J Pediatr Otorhinolaryngol. 2017;99:73–7.

Article  Google Scholar 

Hiremath G, Rogers E, Kennedy E, Hemler J, Acra S. A comparative analysis of eating behavior of school-aged children with eosinophilic esophagitis and their caregivers’ quality of life: perspectives of caregivers. Dysphagia. 2019;34(4):567–74. https://doi.org/10.1007/s00455-019-09984-x.

Article  PubMed  PubMed Central  Google Scholar 

Serel Arslan S, Demir N, Karaduman AA, Tanyel FC, Soyer T. Assessment of the concerns of caregivers of children with repaired esophageal atresia-tracheoesophageal fistula related to feeding-swallowing difficulties. Dysphagia. 2020;35(3):438–42. https://doi.org/10.1007/s00455-019-10046-5.

Article  PubMed  Google Scholar 

Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila Pa 1976). 2000;25(24):3186–91. https://doi.org/10.1097/00007632-200012150-00014.

CAS  Article  Google Scholar 

Scarpelli AC, Paiva SM, Pordeus IA, Varni JW, Viegas CM, Allison PJ. The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian version. Health Qual Life Outcomes. 2008;6:35. https://doi.org/10.1186/1477-7525-6-35.

Article  PubMed  PubMed Central  Google Scholar 

Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQL family impact module: preliminary reliability and validity. Health Qual Life Outcomes. 2004;2:55. https://doi.org/10.1186/1477-7525-2-55.

Article  PubMed  PubMed Central  Google Scholar 

Flabiano-Almeida FC, Bühler K, Limongi S, Protocolo de Avaliação Clínica da Disfagia Pediátrica (PAD-PED). Andrade CR & Limongi S. Barueri: Pró-Fono, 2014. p. 33. (Série Fonoaudiologia na Prática Hospitalar, v. 1)

Sassi FC, Bühler KCB, Juste FS, Almeida FCF, Befi-Lopes DM, de Andrade CRF. Dysphagia and associated clinical markers in neurologically intact children with respiratory disease. Pediatr Pulmonol. 2018;53:517–25. https://doi.org/10.1002/ppul.23955.

Article  PubMed  Google Scholar 

Silva-Munhoz LF, Bühler KCB, Limongi SCO. Comparison between clinical and videofluoroscopic evaluation of swallowing in children with suspected dysphagia. CoDAS. 2015;27(2):186–92. https://doi.org/10.1590/2317-1782/20152014149.

Article  Google Scholar 

American Educational Research Association, American Psychological Association, National Council on Measurement in Education, Joint Committee on Standards for Educational & Psychological Testing (U.S.). Standards for educational and psychological testing. Washington: AERA; 2014.

Google Scholar 

Hair JB Jr, Babin BJ, Anderson RE, Tatham RL. Análise Multivariada de dados. 6ed ed. Porto Alegre: Bookman; 2009.

Google Scholar 

Streiner DL. Starting at the beginning: an introduction to coefficient alpha and internal consistency. J Pers Assess. 2003;80(1):99–103. https://doi.org/10.1207/s15327752jpa8001_18.

Article  PubMed  Google Scholar 

Frost MH, Reeve BB, Liepa AM, Stauffer JW, Hays RD. Mayo/FDA patient-reported outcomes consensus meeting group; what is sufficient evidence for the reliability and validity of patient-reported outcome measures? Value Health. 2007;10(Suppl 2):S94–105. https://doi.org/10.1111/j.1524-4733.2007.00272.x.

Article  PubMed  Google Scholar 

Damásio BF. Uso da análise fatorial exploratória em psicologia. Avaliação Psicológica. 2012;11:213–28.

Google Scholar 

Freitas CPP, Silva CSCd, Damásio BF, Koller SH, Teixeira MAP. Impact of job-related well-being on the relationship of self-efficacy with burnout. Paidéia (Ribeirão Preto). 2016;26:45–52.

Article  Google Scholar 

Kraus EM, Rommel N, Stoll LH, Oettinger A, Vogel AP, Synofzik M. Validation and psychometric properties of the German version of the SWAL-QOL. Dysphagia. 2018;33(4):431–40. https://doi.org/10.1007/s00455-017-9872-5.

Article  PubMed  Google Scholar 

Borsa JC, Damásio BF, Bandeira DR. Adaptação e validação de instrumentos psicológicos entre culturas: algumas considerações. Paidéia (Ribeirão Preto). 2012;22:423–32.

Article  Google Scholar 

Pawlowski J, Trentini CM, Bandeira DR. Discutindo procedimentos psicométricos a partir da análise de um instrumento de avaliação neuropsicológica breve. Psico-USF. 2007;12:211–9.

Article  Google Scholar 

Mishra K, Ramachandran S, Firdaus S, Rath B. The impact of pediatric nephrotic syndrome on parents’ health-related quality of life and family functioning: an assessment made by the PedsQL 4.0 family impact module. Saudi J Kidney Dis Transplant. 2015;26(2):285–92. https://doi.org/10.4103/1319-2442.152420.

Article  Google Scholar 

Murphy NA, Christian B, Caplin DA, Young PC. The health of caregivers for children with disabilities: caregiver perspectives. Child Care Health Dev. 2007;33(2):180–7. https://doi.org/10.1111/j.1365-2214.2006.00644.x.

CAS  Article  PubMed  Google Scholar 

Isa SN, Ishak I, Ab Rahman A, Mohd Saat NZ, Che Din N, Lubis SH, Mohd Ismail MF. Health and quality of life among the caregivers of children with disabilities: a review of literature. Asian J Psychiatr. 2016;23:71–7. https://doi.org/10.1016/j.ajp.2016.07.007.

Article  PubMed  Google Scholar 

Donkor CM, Lee J, Lelijveld N, et al. Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community-based training in Ghana. Food Sci Nutr. 2018;7(1):35–43. https://doi.org/10.1002/fsn3.788.

Article  PubMed  PubMed Central  Google Scholar 

Estrem HH, Thoyre SM, Knafl KA, Frisk Pados B, Van Riper M. “It’s a long-term process”: description of daily family life when a child has a feeding disorder. J Pediatr Health Care. 2018;32(4):340–7. https://doi.org/10.1016/j.pedhc.2017.12.002.

Article  PubMed  PubMed Central  Google Scholar 

Adams MS, Khan NZ, Begum SA, Wirz SL, Hesketh T, Pring TR. Feeding difficulties in children with cerebral palsy: low-cost caregiver training in Dhaka, Bangladesh. Child Care Health Dev. 2012;38(6):878–88. https://doi.org/10.1111/j.1365-2214.2011.01327.x.

留言 (0)

沒有登入
gif