Available online 20 May 2022, 151282

In collaboration with the world's largest online penile cancer support group, the authors created a simple, anonymous survey to highlight and discuss some of the current problems experienced globally by men who have been diagnosed and treated for penile cancer over the last 5-10 years.

The world's largest online penile cancer support community group, https://www.facebook.com/groups/penilemelanoma/, was used.

There are several problematic areas in providing psychological and peer support for patients with penile cancer, which could be improved by a collaborative approach from health care professionals and third-sector organizations.

A patient-led insight into some of the current unmet needs of men treated for penile cancer for clinical practice.

Penile cancer

Support groups

Unmet needs

Survivorship

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