Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review

1. International Agency for Research on Cancer . Cancer tomorrow. Geneva, Switzerland: World Health Organization. 2019; pp. 1–2.
Google Scholar2. Hui, D . Unexpected death in palliative care: what to expect when you are not expecting. Curr Opin Support Palliat Care 2015; 9: 369–374.
Google Scholar | Crossref | Medline3. Mercadante, S, Ferrera, P, Casuccio, A. Unexpected death on an acute palliative care unit. J Pain Symptom Manag 2016; 51: e1–e2.
Google Scholar | Crossref | Medline4. Honea, N . End-of-life care for patients with glioma. Semin Oncol Nurs 2018; 34: 553–568.
Google Scholar | Crossref | Medline5. Rietjens, JAC, Sudore, RL, Connolly, M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol 2017; 18: e543–e551.
Google Scholar | Crossref | Medline6. Block, BL, Smith, AK, Sudore, RL. During COVID-19, outpatient advance care planning Is imperative: we need all hands on deck. J Am Geriatr Soc 2020; 68: 1395–1397.
Google Scholar | Crossref | Medline7. Curtis, JR, Kross, EK, Stapleton, RD. The importance of addressing advance care planning and decisions about do-not-resuscitate orders during novel Coronavirus 2019 (COVID-19). JAMA 2020; 323: 1771–1772.
Google Scholar | Medline8. Bradshaw, A, Bayly, J, Penfold, C, et al. Comment on: “Advance” care planning reenvisioned. J Am Geriatr Soc 2021; 69: 1177–1179.
Google Scholar | Crossref | Medline9. Brinkman-Stoppelenburg, A, Rietjens, JA, van der Heide, A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med 2014; 28: 1000–1025.
Google Scholar | SAGE Journals | ISI10. Weathers, E, O’Caoimh, R, Cornally, N, et al. Advance care planning: a systematic review of randomised controlled trials conducted with older adults. Maturitas 2016; 91: 101–109.
Google Scholar | Crossref | Medline | ISI11. Houben, CHM, Spruit, MA, Groenen, MTJ, et al. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc 2014; 15: 477–489.
Google Scholar | Crossref | Medline | ISI12. Zhang, B, Wright, AA, Huskamp, HA, et al. Health care costs in the last week of life associations with end-of-life conversations. Arch Intern Med 2009; 169: 480–488.
Google Scholar | Crossref | Medline13. Hopp, FP . Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study. Gerontologist 2000; 40: 449–457.
Google Scholar | Crossref | Medline | ISI14. Shalowitz, DI, Garrett-Mayer, E, Wendler, D. The accuracy of surrogate decision makers: a systematic review. Arch Intern Med 2006; 166: 493–497.
Google Scholar | Crossref | Medline15. Goddard, JL . The effect on surrogates of making treatment decisions for others. Ann Intern Med 2011; 155: 206.
Google Scholar | Crossref | Medline16. Elwyn, G, Durand, MA, Song, J, et al. A three-talk model for shared decision making: multistage consultation process. BMJ 2017; 359: j4891.
Google Scholar | Crossref | Medline17. Johnson, SB, Butow, PN, Bell, ML, et al. A randomised controlled trial of an advance care planning intervention for patients with incurable cancer. Br J Cancer 2018; 119: 1182–1190.
Google Scholar | Crossref | Medline18. Sanders, JJ, Curtis, JR, Tulsky, JA. Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact. J Palliat Med 2018; 21: S17–S27.
Google Scholar | Crossref | Medline19. Lin, JJ, Smith, CB, Feder, S, et al. Patients’ and oncologists’ views on family involvement in goals of care conversations. Psychooncology 2018; 27: 1035–1041.
Google Scholar | Crossref | Medline20. Johnson, S, Butow, P, Kerridge, I, et al. Advance care planning for cancer patients: a systematic review of perceptions and experiences of patients, families, and healthcare providers. Psychooncology 2016; 25: 362–386.
Google Scholar | Crossref | Medline21. Creswell, JW, Plano Clark, VL. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks, CA: SAGE Publications Inc, 2017.
Google Scholar22. Kaushik, V, Walsh, CA. Pragmatism as a research paradigm and its implications for social work research. Soc Sci 2019; 8(9): 255.
Google Scholar | Crossref23. Tashakkori, AM, Teddlie, CB. Mixed methodology: combining qualitative and quantitative approaches. 1st ed. Thousand Oaks, CA: SAGE Publications Inc, 1998.
Google Scholar24. Tashakkori, AM, Teddlie, CB. Handbook of mixed methods in social & behavioral research. Thousand Oaks, CA: SAGE Publications, 2003.
Google Scholar25. Bryman, A . Paradigm peace and the implications for quality. Int J Soc Res Methodol 2006; 9: 111–126.
Google Scholar | Crossref26. Page, MJ, McKenzie, JE, Bossuyt, PM, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ 2021; 88: 105906.
Google Scholar27. Tong, A, Flemming, K, McInnes, E, et al. Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Med Res Methodol 2012; 12(1): 181.
Google Scholar | Crossref | Medline | ISI28. Moss, AH, Lunney, JR, Culp, S, et al. Prognostic significance of the ‘surprise’ question in cancer patients. J Palliat Med 2010; 13: 837–840.
Google Scholar | Crossref | Medline | ISI29. Kmet, LM, Lee, RC, Cook, LS. Standard quality assessment criteria for evaluating primary research papers from a variety of fields. Edmonton, Canada: Alberta Heritage Foundation for Medical Research (AHFMR), 2004, pp. 1–22.
Google Scholar30. Lee, L, Packer, TL, Tang, SH, et al. Self-management education programs for age-related macular degeneration: a systematic review. Australas J Ageing 2008; 27: 170–176.
Google Scholar | Crossref | Medline | ISI31. Laidsaar-Powell, RC, Butow, PN, Bu, S, et al. Physician-patient-companion communication and decision-making: a systematic review of triadic medical consultations. Patient Educ Couns 2013; 91: 3–13.
Google Scholar | Crossref | Medline | ISI32. Ryan, R, Synnot, A, Prictor, MHS. Cochrane Consumers and Communication Group data extraction template for included studies. Melbourne: La Trobe University, 2016. pp.1–25.
Google Scholar33. Hoffmann, TC, Glasziou, PP, Boutron, I, et al. Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide. BMJ 2014; 348: g1687.
Google Scholar | Crossref | Medline34. O’Brien, BC, Harris, IB, Beckman, TJ, et al. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med 2014; 89: 1245–1251.
Google Scholar | Crossref | Medline | ISI35. Hong, QN, Pluye, P, Bujold, M, et al. Convergent and sequential synthesis designs: implications for conducting and reporting systematic reviews of qualitative and quantitative evidence. Syst Rev 2017; 6(1): 61.
Google Scholar | Crossref | Medline36. Thomas, J, Harden, A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 2008; 8(1): 45.
Google Scholar | Crossref | Medline | ISI37. Rowher, A, Booth, A, Pfadenhauer, L, et al. Guidance on the use of logic models in health technology assessments of complex interventions. Int J Technol Assess Health Care 2017; 33: 562–569. http://Guidance-on-the-use-of-logic-models-in-health-technology-assessments-of-complex-interventions.pdf
Google Scholar | Crossref38. Rodenbach, RA, Brandes, K, Fiscella, K, et al. Promoting end-of-life discussions in advanced cancer: effects of patient coaching and question prompt lists. J Clin Oncol 2017; 35: 842–851.
Google Scholar | Crossref | Medline39. Vaccaro, L, Butow, PN, Lee, D, et al. Fidelity is fundamental: intervention predictors in advance care plans in terminal cancer. BMJ Support Palliat Care 2019; 9: 397–403.
Google Scholar | Medline40. Walczak, A, Butow, PN, Tattersall, MH, et al. Encouraging early discussion of life expectancy and end-of-life care: a randomised controlled trial of a nurse-led communication support program for patients and caregivers. Int J Nurs Stud 2017; 67: 31–40.
Google Scholar | Crossref | Medline41. Kwok, YL, Leung, WM, Agarwal, A, et al. Advance directives in Chinese patients with cancer: a retrospective study in a single palliative care unit. J Pain Manag 2018; 11: 31–40.
Google Scholar42. Lin, C-P, Evans, CJ, Koffman, J, et al. What influences patients’ decisions regarding palliative care in advance care planning discussions? Perspectives from a qualitative study conducted with advanced cancer patients, families and healthcare professionals. Palliat Med 2019; 33: 1299–1309.
Google Scholar | SAGE Journals | ISI43. Michael, N, O’Callaghan, C, Baird, A, et al. Cancer caregivers advocate a patient- and family-centered approach to advance care planning. J Pain Symptom Manag 2014; 47: 1064–1077.
Google Scholar | Crossref | Medline44. Geerse, OP, Lamas, DJ, Sanders, JJ, et al. A qualitative study of serious illness conversations in patients with advanced cancer. J Palliat Med 2019; 22: 773–781.
Google Scholar | Crossref | Medline45. Sharma, RK, Cameron, KA, Zech, JM, et al. Goals-of-Care decisions by hospitalized patients with advanced cancer: missed clinician opportunities for facilitating shared decision-making. J Pain Symptom Manag 2019; 58: 216–223.
Google Scholar | Crossref | Medline46. Johnson, SB, Butow, PN, Kerridge, I, et al. What do patients with cancer and their families value most at the end of life? A critical analysis of advance care planning. Int J Palliat Nurs 2017; 23: 596–604.
Google Scholar | Crossref | Medline47. Epstein, AS, Shuk, E, O'Reilly, EM, et al. ‘We have to discuss it’: cancer patients’ advance care planning impressions following educational information about cardiopulmonary resuscitation. Psychooncology 2015; 24: 1767–1773.
Google Scholar | Crossref | Medline48. Robinson, CA . ‘Our best hope is a cure.’ hope in the context of advance care planning. Palliat Support Care 2012; 10: 75–82.
Google Scholar | Crossref | Medline49. Lin, CP, Evans, CJ, Koffman, J, et al. Feasibility and acceptability of a culturally adapted advance care planning intervention for people living with advanced cancer and their families: a mixed methods study. Palliat Med 2020; 34: 651–666.
Google Scholar | SAGE Journals | ISI50. Kumar, P, Wixon-Genack, J, Kavanagh, J, et al. Serious illness conversations with outpatient oncology clinicians: understanding the patient experience. J Oncol Pract 2020; 16: e1507–e1515.
Google Scholar | Crossref51. Miller, JG . Living systems. Boulder, CO: University Press of Colorado, 1995.
Google Scholar52. Illingworth, N, Forbat, L, Hubbard, G, et al. The importance of relationships in the experience of cancer: a re-working of the policy ideal of the whole-systems approach. Eur J Oncol Nurs 2010; 14: 23–28.
Google Scholar | Crossref | Medline | ISI53. Carolan, CM, Smith, A, Forbat, L. Conceptualising psychological distress in famil

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