Healthcare Workers’ Experiences of Caring for Patients Diagnosed with Intellectual Disability Co‐occurrent with Psychiatric Disorders

Introduction

When intellectual disability co-occurs diagnosed with psychiatric disorders (IDPD), the impact of the burden of illness on the affected individuals, their caregivers, their family and friends, and the services that provide for them is particularly high. The issues of the mental health of people diagnosed with ID have received little, if any, attention. One specific area of neglect is healthcare workers’ experiences of caring for patients diagnosed with IDPD.

Aim

The aim of this study was to understand healthcare workers’ experiences of caring for patients diagnosed with IDPD.

Methods

A qualitative descriptive research approach and semi-structured interviews were used in this study. We interviewed 15 participants who had experience in caring for patients diagnosed with a dual diagnosis of IDPD.

Findings

Four themes were found, as follows: (1) Negative impacts of insufficient staffing on the quality of care, (2) Constantly worrying about harmful incidents, (3) Discovering effective ways to provide individual patient care and (4) Adjusting expectations and attitudes toward patients. Participants’ experiences revealed that they perceived the importance and effectiveness of providing individualized care for IDPD patients. However, when staffing is insufficient, they may be forced to ignore the individualized needs of patients so as to facilitate management. They may also feel frustrated by not being able to anticipate or deal with patients’ unexpected problem behaviors or accidents. In addition, they adapt by adjusting their expectations of the patients.

Discussion

The findings from this research help to fill the knowledge gap in our understanding of healthcare workers’ experiences of and their perspectives on caring for patients diagnosed with IDPD.

Implications for Practice

Healthcare administrators need to understand the difficulties faced by staff in caring for patients diagnosed with IDPD, arrange appropriate in-service education to increase the healthcare workers’ knowledge and skills in caring for patients diagnosed with IDPD, and create warm and supportive environments for them. The government department overseeing the management of institutions providing ID patient care should be empowered to conduct regular monitoring of the overall staffing and quality of care in such institutions.

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