Theoretically Based Factors Affecting Stroke Family Caregiver Health: An Integrative Review

Ågren, S., Strömberg, A., Jaarsma, T., Luttik, M. L. (2015). Caregiving tasks and caregiver burden; Effects of a psycho-educational intervention in partners of patients with post-operative heart failure. Heart & Lung, 44(4), 270–275. https://doi.org/10.1016/j.hrtlng.2015.04.003
Google Scholar Akosile, C. O., Banjo, T. O., Okoye, E. C., Ibikunle, P. O., Odole, A. C. (2018). Informal caregiving burden and perceived social support in an acute stroke care facility. Health & Quality of Life Outcomes, 16(1), Article 57. https://doi.org/10.1186/s12955-018-0885-z
Google Scholar Alslman, E. T., Ahmad, M. M., Bani Hani, M. A., Atiyeh, H. M. (2017). Health: A developing concept in nursing. International Journal of Nursing Knowledge, 28(2), 64–69. https://doi.org/10.1111/2047-3095.12113
Google Scholar Bakas, T., Austin, J. K., Habermann, B., Jessup, N. M., McLennon, S. M., Mitchell, P. H., Morrison, G., Yang, Z., Stump, T. E., Weaver, M. T. (2015). Telephone assessment and skill-building kit for stroke caregivers: A randomized controlled clinical trial. Stroke, 46(12), 3478–3487. https://doi.org/10.1161/STROKEAHA.115.011099
Google Scholar Bakas, T., Austin, J. K., Jessup, S. L., Williams, L. S., Oberst, M. T. (2004). Time and difficulty of tasks provided by family caregivers of stroke survivors. The Journal of Neuroscience Nursing, 36(2), 95–106. https://doi.org/10.1097/01376517-200404000-00007
Google Scholar Bakas, T., Champion, V. (1999). Development and psychometric pesting of the Bakas Caregiving Outcomes Scale. Nursing Research, 48(5), 250–259. https://doi.org/10.1097/00006199-199909000-00005
Google Scholar Bakas, T., Champion, V., Perkins, S. M., Farran, C. J., Williams, L. S. (2006). Psychometric testing of the revised 15-item Bakas Caregiving Outcomes Scale. Nursing Research, 55(5), 346–355. https://doi.org/10.1097/00006199-200609000-00007
Google Scholar Bakas, T., Clark, P. C., Kelly-Hayes, M., King, R. B., Lutz, B. J., Miller, E. L., & American Heart Association Council on Cardiovascular and Stroke Nursing and the Stroke Council (2014). Evidence for stroke family caregiver and dyad interventions: A statement for healthcare professionals from the American Heart Association and American Stroke Association. Stroke, 45(9), 2836–2852. https://doi.org/10.1161/STR.0000000000000033
Google Scholar Bakas, T., Farran, C. J., Austin, J. K., Given, B. A., Johnson, E. A., Williams, L. S. (2009). Stroke caregiver outcomes from the Telephone Assessment and Skill-Building Kit (TASK). Topics in Stroke Rehabilitation, 16(2), 105–121. https://doi.org/10.1310/tsr1602-105
Google Scholar Bakas, T., McCarthy, M., Miller, E. T. (2017). Update on the state of the evidence for stroke family caregiver and dyad interventions. Stroke, 48(5), e122–e125. https://doi.org/10.1161/STROKEAHA.117.016052
Google Scholar Bakas, T., McLennon, S. M., Carpenter, J. S., Buelow, J. M., Otte, J. L., Hanna, K. M., Ellett, M. L., Hadler, K. A., Welch, J. L. (2012). Systematic review of health-related quality of life models. Health & Quality of Life Outcomes, 10(1), Article 134. https://doi.org/10.1186/1477-7525-10-134
Google Scholar Baumann, M., Couffignal, S., Le Bihan, E., Chau, N. (2012). Life satisfaction two-years after stroke onset: The effects of gender, sex, occupational status, memory function and quality of life among stroke patients (Newsqol) and their family caregivers (Whoqol-bref) in Luxembourg. BMC Neurology, 12(1), Article 105. https://doi.org/10.1186/1471-2377-12-105
Google Scholar Bhattacharjee, M., Vairale, J., Gawali, K., Dalal, P. M. (2012). Factors affecting burden on caregivers of stroke survivors: Population-based study in Mumbai (India). Annals of Indian Academy of Neurology, 15(2), 113–119. https://doi.org/10.4103/0972-2327.94994
Google Scholar Bierhals, C. C. B. K., Low, G., Paskulin, L. M. G. (2019). Quality of life perceptions of family caregivers of older adults stroke survivors: A longitudinal study. Applied Nursing Research, 47, 57–62. https://doi.org/10.1016/j.apnr.2019.05.003
Google Scholar Bircher, J., Kuruvilla, S. (2014). Defining health by addressing individual, social, and environmental determinants: New opportunities for health care and public health. Journal of Public Health Policy, 35(3), 363–386. https://doi.org/10.1057/jphp.2014.19
Google Scholar Bom, J., Bakx, P., Schut, F., van Doorslaer, E. (2019). The impact of informal caregiving for older adults on the health of various types of caregivers: A systematic review. Gerontologist, 59(5), e629–e642. https://doi.org/10.1093/geront/gny137
Google Scholar Brasier, C., Ski, C. F., Thompson, D. R., Cameron, J., O’Brien, C. L., Lautenschlager, N. T., Gonzales, G., Hsueh, Y. S., Moore, G., Knowles, S. R., Rossell, S. L., Haselden, R., Castle, D. J. (2016). The Stroke and Carer Optimal Health Program (SCOHP) to enhance psychosocial health: Study protocol for a randomized controlled trial. Trials, 17(1), Article 446. https://doi.org/10.1186/s13063-016-1559-y
Google Scholar Bucki, B., Spitz, E., Baumann, M. (2019). Emotional and social repercussions of stroke on patient-family caregiver dyads: Analysis of diverging attitudes and profiles of the differing dyads. PLoS One, 14(4), Article e0215425. https://doi.org/10.1371/journal.pone.0215425
Google Scholar Byun, E., Evans, L., Sommers, M., Tkacs, N., Riegel, B. (2019). Depressive symptoms in caregivers immediately after stroke. Topics in Stroke Rehabilitation, 26(3), 187–194. https://doi.org/10.1080/10749357.2019.1590950
Google Scholar Byun, E., Riegel, B., Sommers, M., Tkacs, N., Evans, L. (2017). Effects of uncertainty on perceived and physiological stress in caregivers of stroke survivors: A 6-week longitudinal study. Journal of Gerontological Nursing, 43(11), 30–40. https://doi.org/10.3928/00989134-20170623-02
Google Scholar Carod-Artal, F. J., Egido, J. A. (2009). Quality of life after stroke: The importance of a good recovery. Cerebrovascular Diseases, 27(Suppl. 1), 204–214. https://doi.org/10.1159/000200461
Google Scholar Carvalho Dias, M., Martins, T., Basilio, G., Lucas Neto, L., Caeiro, L., Ferro, J. M., Verdelho, A. (2020). Headache at the chronic stage of ischemic stroke. Headache, 60(3), 607–614. https://doi.org/10.1111/head.13761
Google Scholar Chau, J. P. C., Lo, S. H. S., Lee, V. W. Y., Choi, K. C., Shum, E. W. C., Hung, Z. S. S., Mok, V. C. T., Siow, E. K. C., Ching, J. Y. L., Lam, S. K. Y., Yeung, J. H. M., Li, S. H., Lau, A. Y. L. (2019). Effectiveness and cost-effectiveness of a virtual multidisciplinary stroke care clinic for community-dwelling stroke survivors and caregivers: A randomised controlled trial protocol. BMJ Open, 9(5), Article e026500. https://doi.org/10.1136/bmjopen-2018-026500
Google Scholar Chung, M. L., Bakas, T., Plue, L. D., Williams, L. S. (2016). Effects of self-esteem, optimism, and perceived control on depressive symptoms in stroke survivor-spouse dyads. The Journal of Cardiovascular Nursing, 31(2), E8–E16. https://doi.org/10.1097/JCN.0000000000000232
Google Scholar Clay, O. J., Grant, J. S., Wadley, V. G., Perkins, M. M., Haley, W. E., Roth, D. L. (2013). Correlates of health-related quality of life in African American and Caucasian stroke caregivers. Rehabilitation Psychology, 58(1), 28–35. https://doi.org/10.1037/a0031726
Google Scholar Clery, A., Bhalla, A., Bisquera, A., Skolarus, L. E., Marshall, I., McKevitt, C., Rudd, A., Sackley, C., Martin, F. C., Manthorpe, J., Wolfe, C., Wang, Y. (2020). Long-term trends in stroke survivors discharged to care homes: The South London Stroke Register. Stroke, 51(1), 179–185. https://doi.org/10.1161/strokeaha.119.026618
Google Scholar Connolly, T., Mahoney, E. (2018). Stroke survivors’ experiences transitioning from hospital to home. Journal of Clinical Nursing, 27(21–22), 3979–3987. https://doi.org/10.1111/jocn.14563
Google Scholar Costa, T. F., Gomes, T. M., Viana, L. R., Martins, K. P., Costa, K. N. (2016). Stroke: Patient characteristics and quality of life of caregivers (Acidente vascular encefálico: Características do paciente e qualidade de vida de cuidadores). Revista Brasileira de Enfermagem, 69(5), 933–939. https://doi.org/10.1590/0034-7167-2015-0064
Google Scholar Dang, D., Dearholt, S. L. (2017). Johns Hopkins nursing evidence-based practice: Model and guidelines (3rd ed.). Sigma Theta Tau International.
Google Scholar Dankner, R., Bachner, Y. G., Ginsberg, G., Ziv, A., David, H. B., Litmanovitch-Goldstein, D., Chodick, G., Balicer, R., Tanne, D., Greenberg, D. (2016). Correlates of well-being among caregivers of long-term community-dwelling stroke survivors. International Journal of Rehabilitation Research, 39(4), 326–330. https://doi.org/10.1097/MRR.0000000000000192
Google Scholar Danzl, M. M., Hunter, E. G., Campbell, S., Sylvia, V., Kuperstein, J., Maddy, K., Harrison, A. (2013). “Living with a ball and chain”: The experience of stroke for individuals and their caregivers in rural Appalachian Kentucky. The Journal of Rural Health, 29(4), 368–382. https://doi.org/10.1111/jrh.12023
Google Scholar Des Jarlais, D. C., Lyles, C., Crepaz, N., & TREND Group (2004). Improving the reporting quality of non-randomized evaluations of behavioral and public health interventions: The TREND statement. American Journal of Public Health, 94(3), 361–366. https://doi.org/10.2105/ajph.94.3.361
Google Scholar Duncan, E., O’Cathain, A., Rousseau, N., Croot, L., Sworn, K., Turner, K. M., Yardley, L., Hoddinott, P. (2020). Guidance for reporting intervention development studies in health research (GUIDED): An evidence-based consensus study. BMJ open, 10(4), Article e033516. https://doi.org/10.1136/bmjopen-2019-033516
Google Scholar Emrani, Z., Akbari Sari, A., Zeraati, H., Olyaeemanesh, A., Daroudi, R. (2020). Health-related quality of life measured using the EQ-5D–5L: Population norms for the capital of Iran. Health & Quality of Life Outcomes, 18(1), Article 108. https://doi.org/10.1186/s12955-020-01365-5
Google Scholar Ferrans, C. E., Zerwic, J. J., Wilbur, J. E., Larson, J. L. (2005). Conceptual model of health-related quality of life. Journal of Nursing Scholarship, 37(4), 336–342. https://doi.org/10.1111/j.1547-5069.2005.00058.x
Google Scholar Godwin, K. M., Cron, S. G., Ostwald, S. K. (2010). Long-term stroke related health outcomes for stroke survivors and their spousal caregivers. Stroke, 41(4), e359–e360.
Google Scholar Godwin, K. M., Ostwald, S. K., Cron, S. G., Wasserman, J. (2013). Long-term health-related quality of life of stroke survivors and their spousal caregivers. Journal of Neuroscience Nursing, 45(3), 147–154. https://doi.org/10.1097/JNN.0b013e31828a410b
Google Scholar Gosman-Hedström, G., Claesson, L., Blomstrand, C. (2008). Consequences of severity at stroke onset for health-related quality of life (HRQL) and informal care: A 1-year follow-up in elderly stroke survivors. Archives of Gerontology & Geriatrics, 47(1), 79–91. https://doi.org/10.1016/j.archger.2007.07.006
Google Scholar Haley, W. E., Roth, D. L., Hovater, M., Clay, O. J. (2015). Long-term impact of stroke on family caregiver well-being: A population-based case-control study. Neurology, 84(13), 1323–1329. https://doi.org/10.1212/WNL.0000000000001418
Google Scholar Hung, S. Y., Pickard, A. S., Witt, W. P., Lambert, B. L. (2007). Pain and depression in caregivers affected their perception of pain in stroke patients. Journal of Clinical Epidemiology, 60(9), 963–970. https://doi.org/10.1016/j.jclinepi.2006.12.010
Google Scholar Ignatiou, M., Christaki, V., Chelas, E. N., Efstratiadou, E. A., Hilari, K. (2012). Agreement between people with aphasia and their proxies on health-related quality of life after stroke, using the Greek SAQOL-39g. Psychology, 3(9), 686–690. http://doi.org/10.4236/psych.2012.39104
Google Scholar Kniepmann, K. (2012). Female family carers for survivors of stroke: Occupational loss and quality of life. British Journal of Occupational Therapy, 75(5), 208–216. https://doi.org/10.4276/030802212X13361458480207
Google Scholar Kniepmann, K. (2014). Family caregiving for husbands with stroke: An occupational perspective on leisure in the stress process. OTJR: Occupation, Participation & Health, 34(3), 131–140. https://doi.org/10.3928/15394492-20140325-01
Google Scholar Lazarus, R. S., Folkman, S. (1984). Stress, appraisal, and coping. Springer Publishing Company.
Google Scholar Li, T. C., Lee, Y. D., Lin, C. C., Amidon, R. L. (2004). Quality of life of primary caregivers of elderly with cerebrovascular disease or diabetes hospitalized for acute care: Assessment of well-being and functioning using the SF-36 Health Questionnaire. Quality of Life Research, 13(6), 1081–1088. https://doi.org/10.1023/B:QURE.0000031349.25124.d6
Google Scholar Liu, C., Prvu-Bettger, J., Sheehan, O. C., Huang, J., Roth, D. L. (2019). Association of formal and informal care with health-related quality of life and depressive symptoms: Findings from the caring for adults recovering from the effects of stroke study. Disability & Rehabilitation, 43(8), 1092–1100. https://doi.org/10.1080/09638288.2019.1650965
Google Scholar Marsden, D., Quinn, R., Pond, N., Golledge, R., Neilson, C., White, J., McElduff, P., Pollack, M. (2010). A multidisciplinary group programme in rural settings for community-dwelling chronic stroke survivors and their carers: A pilot randomized controlled trial. Clinical Rehabilitation, 24(4), 328–341. https://doi.org/10.1177/0269215509344268
Google Scholar McGrath, C., McMillan, A. S., Zhu, H. W., Li, L. S. W. (2009). Agreement between patient and proxy assessments of oral health-related quality of life after stroke: An observational longitudinal study. Journal of Oral Rehabilitation, 36(4), 264–270. https://doi.org/10.1111/j.1365-2842.2009.01941.x
Google Scholar McPherson, C. J., Wilson, K. G., Chyurlia, L., Leclerc, C. (2011). The caregiving relationship and quality of life among partners of stroke survivors: A cross-sectional study. Health & Quality of Life Outcomes, 9(1), Article 29. https://doi.org/10.1186/1477-7525-9-29
Google Scholar Miyashita, M., Yamaguchi, A., Kayama, M., Narita, Y., Kawada, N., Akiyama, M., Hagiwara, A., Suzukamo, Y., Fukuhara, S. (2006). Validation of the Burden Index of Caregivers (BIC), a multidimensional short care burden scale from Japan. Health & Quality of Life Outcomes, 4(1), Article 52. https://doi.org/10.1186/1477-7525-4-52
Google Scholar Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & PRISMA Group (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA Statement. PLoS Medicine, 6(7), Article e1000097. https://doi.org/10.1371/journal.pmed.1000097
Google Scholar Morimoto, T., Schreiner, A. S., Asano, H. (2003). Caregiver burden and health-related quality of life among Japanese stroke caregivers. Age & Ageing, 32(2), 218–223. https://doi.org/10.1093/ageing/32.2.218
Google Scholar Muro, M. J., de Pedro-Cuesta, J., Almazan, J., Holmqvist, L. W. (2000). Stroke patients in South Madrid: Function and motor recovery, resource utilization, and family support. Stroke, 31(6), 1352–1359. https://doi.org/10.1161/01.STR.31.6.1352
Google Scholar Nobile, M. (2014). The WHO definition of health: A critical reading. Medicine & Law, 33(2), 33–40.
Google Scholar | Medline Oliva-Moreno, J., Peña-Longobardo, L. M., Mar, J., Masjuan, J., Soulard, S., Gonzalez-Rojas, N., Becerra, V., Casado, M. Á., Torres, C., Yebenes, M., Quintana, M., Alvarez-Sabín, J. (2018). Determinants of informal care, burden, and risk of burnout in caregivers of stroke survivors: The CONOCES Study. Stroke, 49(1), 140–146. https://doi.org/10.1161/STROKEAHA.117.017575
Google Scholar Ouzzani, M., Hammady, H., Fedorowicz, Z., Elmagarmid, A. (2016). Rayyan-a Web and Mobile App for systematic reviews. Systematic Reviews, 5(1), Article 210. https://doi.org/10.1186/s13643-016-0384-4
Google Scholar Özakgül, A. A., Aştı, T. A. (2018). The effect of training provided to the relatives of stroke patients on the life quality, anxiety and depressive symptom levels of patients and their relatives. Journal of Neurological & Neurosurgical Nursing, 7(2), 56–63. https://doi.org/10.15225/PNN.2018.7.2.1
Google Scholar Pai, H. C., Tsai, Y. C. (2016). The effect of cognitive appraisal on quality of life of providers of home care for patients with stroke. The Journal of Neuroscience Nursing, 48(1), E2–E11. https://doi.org/10.1097/JNN.0000000000000175
Google Scholar Parag, V., Hackett, M. L., Yapa, C. M., Kerse, N., McNaughton, H., Feigin, V. L., Anderson, C. S. (2008). The impact of stroke on unpaid caregivers: Results from the Auckland Regional Community Stroke Study, 2002–2003. Cerebrovascular Diseases, 25(6), 548–554. https://doi.org/10.1159/000131673
Google Scholar Persson, C. U., Holmegaard, L., Redfors, P., Jern, C., Blomstrand, C., Jood, K. (2020). Increased muscle tone and contracture late after ischemic stroke. Brain & Behavior, 10(2), Article e01509. https://doi.org/10.1002/brb3.1509
Google Scholar Persson, J., Holmegaard, L., Karlberg, I., Redfors, P., Jood, K., Jern, C., Blomstrand, C., Forsberg-Warleby, G. (2015). Spouses of stroke survivors report reduced health-related quality of life even in long-term follow-up: Results from Sahlgrenska Academy study on ischemic stroke. Stroke, 46(9), 2584–2590. https://doi.org/10.1161/STROKEAHA.115.009791
Google Scholar Rigby, H., Gubitz, G., Eskes, G., Reidy, Y., Christian, C., Grover, V., Phillips, S. (

留言 (0)

沒有登入
gif