Medicaid Disruption Among Transition-Age Youth on the Autism Spectrum

Altman, S., O’Connor, S., Anapolsky, E., Sexton, L. (2014). Federal and state benefits for transition age youth. Journal of Pediatric Rehabilitation Medicine, 7(1), 71–77. https://doi.org/10.3233/PRM-140270
Google Scholar Ames, J. L., Massolo, M. L., Davignon, M. N., Qian, Y., Cerros, H. J., Croen, L. A. (2021). Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey. Autism, 25(3), 731–743. https://doi.org/10.1177/1362361320926318
Google Scholar Benevides, T. W., Carretta, H. J., Rust, G., Shea, L. (2021). Racial and ethnic disparities in benefits eligibility and spending among adults on the autism spectrum: A cohort study using the Medicare Medicaid Linked Enrollees Analytic Data Source. PLOS ONE, 16(5), Article e0251353. https://doi.org/10.1371/journal.pone.0251353
Google Scholar Betz, C., Lobo, M., Nehring, W., Bui, K. (2013). Voices not heard: A systematic review of adolescents’ and emerging adults’ perspectives of health care transition. Nursing Outlook, 61(5), 311–336.
Google Scholar | Crossref | Medline Black, M. M., Molaison, V. A., Smull, M. W. (1990). Families caring for a young adult with mental retardation: Service needs and urgency of community living requests. American Journal of Mental Retardation, 95(1), 32–39.
Google Scholar | Medline Braddock, D., Hemp, R., Rizzolo, M., Haffer, L., Tanis, E., Wu, J. (2011). The state of the states in developmental disabilities: 2011. American Association on Intellectual and Developmental Disabilities.
Google Scholar Briggs, A., Claxton, K., Sculpher, M. (2006). Decision modelling for health economic evaluation. Oxford University Press.
Google Scholar Burke, J. P., Jain, A., Yang, W., Kelly, J. P., Kaiser, M., Becker, L., . . .Newschaffer, C. J. (2014). Does a claims diagnosis of autism mean a true case? Autism, 18(3), 321–330. https://doi.org/10.1177/1362361312467709
Google Scholar Byrd, V., Dodd, A. (2015). Assessing the usability of encounter data for enrollees in comprehensive managed care 2010-2011. https://www.cms.gov/Research-Statistics-Data-and-Systems/Computer-Data-and-Systems/MedicaidDataSourcesGenInfo/Downloads/MAX_Encounter_Brief_2010_2011.pdf
Google Scholar Candon, M. K., Barry, C. L., Epstein, A. J., Marcus, S. C., Kennedy-Hendricks, A., Xie, M., Mandell, D. S. (2018). The differential effects of insurance mandates on health care spending for children’s autism spectrum disorder. Medical Care, 56(3), 228–232. https://doi.org/10.1097/MLR.0000000000000863
Google Scholar Cidav, Z., Lawer, L., Marcus, S. C., Mandell, D. S. (2013). Age-related variation in health service use and associated expenditures among children with autism. Journal of Autism and Developmental Disorders, 43(4), 924–931. https://doi.org/10.1007/s10803-012-1637-2
Google Scholar Dodds, L., Spencer, A., Shea, S., Fell, D., Armson, B. A., Allen, A. C., Bryson, S. (2009). Validity of autism diagnoses using administrative health data. Chronic Diseases in Canada, 29(3), 102–107.
Google Scholar | Crossref | Medline Friedman, C. (2017). A national analysis of Medicaid home and community based services waivers for people with intellectual and developmental disabilities: FY 2015. Intellectual and Developmental Disabilities, 55(5), 281–302. https://doi.org/10.1352/1934-9556-55.5.281
Google Scholar Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics & Adolescent Medicine, 161(4), 343–349. https://doi.org/10.1001/archpedi.161.4.343
Google Scholar Garfield, R. (2011). Mental health financing in the United States—A primer. www.kff.org/medicaid/8182.cfm
Google Scholar Garfield, R., Damico, A. (2016). The coverage gap: Uninsured poor adults in states that do not expand Medicaid. http://www.kff.org/uninsured/issue-brief/the-coverage-gap-uninsured-poor-adults-in-states-that-do-not-expand-medicaid/
Google Scholar Hall-Lande, J., Hewitt, A., Mosely, C. R. (2011). Policy research brief: A national review of home and community based services (HCBS) for individuals with autism spectrum disorders. University of Minnesota.
Google Scholar Howlin, P., Goode, S., Hutton, J., Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45(2), 212–229.
Google Scholar | Crossref | Medline | ISI Hyman, S. L., Levy, S. E., Myers, S. M. & Council on Children With Disabilities . (2020a). Executive summary: Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics, 145(1), Article e20193448. https://doi.org/10.1542/peds.2019-3448
Google Scholar Hyman, S. L., Levy, S. E., Myers, S. M., & Council on Children With Disabilities . (2020b). Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics, 145(1), Article e20193447. https://doi.org/10.1542/peds.2019-3447
Google Scholar Jenkins, S. (1995). Easy estimation methods for discrete-time duration models. In Oxford bulletin of economics and statistics (Vol. 57, pp. 129–138). Department of Economics, University of Oxford.
Google Scholar | Crossref Ji, X., Wilk, A. S., Druss, B. G., Lally, C., Cummings, J. R. (2017). Discontinuity of Medicaid coverage: Impact on cost and utilization among adult Medicaid beneficiaries with major depression. Medical Care, 55(8), 735–743. https://doi.org/10.1097/MLR.0000000000000751
Google Scholar Kennedy-Hendricks, A., Epstein, A. J., Mandell, D. S., Candon, M. K., Marcus, S. C., Xie, M., Barry, C. L. (2018). Effects of state autism mandate age caps on health service use and spending among adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 57(2), 125–131. https://doi.org/10.1016/j.jaac.2017.10.019
Google Scholar Kitchener, M., Carrillo, H., Harrington, C. (2003). Medicaid community-based programs: A longitudinal analysis of state variation in expenditures and utilization. Inquiry, 40(4), 375–389. https://doi.org/10.5034/inquiryjrnl_40.4.375
Google Scholar Koffer Miller, K. H., Mathew, M., Nonnemacher, S. L., Shea, L. L. (2018). Program experiences of adults with autism, their families, and providers: Findings from a focus group study. Autism, 22(3), 345–356. https://doi.org/10.1177/1362361316679000
Google Scholar Li, Y., Zhu, Y., Chen, C., Wang, X., Choi, Y., Henriksen, C., Winterstein, A. G. (2018). Internal validation of Medicaid Analytic eXtract (MAX) data capture for comprehensive managed care plan enrollees from 2007 to 2010. Pharmacoepidemiology and Drug Safety, 27(10), 1067–1076. https://doi.org/10.1002/pds.4365
Google Scholar Lloyd, B. P., Kennedy, C. H. (2014). Assessment and treatment of challenging behaviour for individuals with intellectual disability: A research review. Journal of Applied Research in Intellectual Disabilities, 27(3), 187–199. https://doi.org/10.1111/jar.12089
Google Scholar Lubetsky, M. J., Handen, B. L., Lubetsky, M., McGonigle, J. J. (2014). Systems of care for individuals with autism spectrum disorder and serious behavioral disturbance through the lifespan. Child and Adolescent Psychiatric Clinics of North America, 23(1), 97–110. https://doi.org/10.1016/j.chc.2013.08.004
Google Scholar Mandell, D. S., Cao, J., Ittenbach, R., Pinto-Martin, J. (2006). Medicaid expenditures for children with autistic spectrum disorders: 1994 to 1999. Journal of Autism and Developmental Disorders, 36(4), 475–485. https://doi.org/10.1007/s10803-006-0088-z
Google Scholar Martin, A. B., Vyavaharkar, M., Veschusio, C., Kirby, H. (2012). Rural-urban differences in dental service utilization among an early childhood population enrolled in South Carolina Medicaid. Maternal and Child Health Journal, 16(1), 203–211. https://doi.org/10.1007/s10995-010-0725-1
Google Scholar Miller, N. A., Merryman, M. B., Eskow, K. G., Chasson, G. S. (2016). State design and use of Medicaid 1915(c) waivers and related benefits to provide services to children and youth with autism spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 121(4), 295–311. https://doi.org/10.1352/1944-7558-121.4.295
Google Scholar Nicholas, D. B., Hodgetts, S., Zwaigenbaum, L., Smith, L. E., Shattuck, P., Parr, J. R., . . .Stothers, M. E. (2017). Research needs and priorities for transition and employment in autism: Considerations reflected in a “Special Interest Group” at the International Meeting for Autism Research. Autism Research, 10(1), 15–24. https://doi.org/10.1002/aur.1683
Google Scholar Papazoglou, A., Jacobson, L. A., McCabe, M., Kaufmann, W., Zabel, T. A. (2014). To ID or not to ID? Changes in classification rates of intellectual disability using DSM-5. Intellectual and Developmental Disabilities, 52(3), 165–174. https://doi.org/10.1352/1934-9556-52.3.165
Google Scholar Pati, S., Calixte, R., Wong, A., Huang, J., Baba, Z., Luan, X., Cnaan, A. (2018). Maternal and child patterns of Medicaid retention: A prospective cohort study. BMC Pediatrics, 18(1), Article 275. https://doi.org/10.1186/s12887-018-1242-4
Google Scholar Pullmann, M. D., Heflinger, C. A., Satterwhite Mayberry, L. (2010). Patterns of Medicaid disenrollment for youth with mental health problems. Medical Care Research and Review, 67(6), 657–675. https://doi.org/10.1177/1077558710369911
Google Scholar Qian, J., Wittayanukorn, S., McGuffey, G., Hansen, R. (2015). Factors associated with psychotropic prescriptions, psychiatric hospitalization, and spending among Medicare beneficiaries under 65. Disability and Health Journal, 8(3), 424–433. https://doi.org/10.1016/j.dhjo.2015.03.005
Google Scholar Rizzolo, M. C., Friedman, C., Lulinski-Norris, A., Braddock, D. (2013). Home and community based services (HCBS) waivers: A nationwide study of the states. Intellectual and Developmental Disabilities, 51(1), 1–21. https://doi.org/10.1352/1934-9556-51.01.001
Google Scholar Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(9), 931–939. https://doi.org/10.1016/j.jaac.2013.05.019
Google Scholar Schott, W., Verstreate, K., Tao, S., Shea, L. (2021). Autism grows up: Medicaid’s role in serving adults on the spectrum. Psychiatric Services, 72, 597. https://doi.org/10.1176/appi.ps.202000144
Google Scholar Seltzer, M., Shattuck, P., Abbeduto, L., Greenberg, J. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234–347.
Google Scholar | Crossref | Medline Semansky, R. M., Xie, M., Lawer, L. J., Mandell, D. S. (2013). How states use Medicaid to fund community-based services to children with autism spectrum disorders. Psychiatric Services, 64(10), 1051–1055. https://doi.org/10.1176/appi.ps.201200390
Google Scholar Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatrics & Adolescent Medicine, 165(2), 141–146. https://doi.org/10.1001/archpediatrics.2010.279
Google Scholar Shea, L. L., Field, R., Xie, M., Marcus, S., Newschaffer, C., Mandell, D. (2019). Transition-age Medicaid coverage for adolescents with autism and adolescents with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 124(2), 174–185. https://doi.org/10.1352/1944-7558-124.2.174
Google Scholar Shea, L. L., Koffer Miller, K. H., Verstreate, K., Tao, S., Mandell, D. (2021). States’ use of Medicaid to meet the needs of autistic individuals. Health Services Research. Advance online publication. https://doi.org/10.1111/1475-6773.13671
Google Scholar Sommers, B. D. (2009). Loss of health insurance among non-elderly adults in Medicaid. Journal of General Internal Medicine, 24(1), 1–7. https://doi.org/10.1007/s11606-008-0792-9
Google Scholar Stuart, E. A., McGinty, E. E., Kalb, L., Huskamp, H. A., Busch, S. H., Gibson, T. B., . . .Barry, C. L. (2017). Increased service use among children with autism spectrum disorder associated with mental health parity law. Health Affairs (Millwood), 36(2), 337–345. https://doi.org/10.1377/hlthaff.2016.0824
Google Scholar Sun, J. W., Bourgeois, F. T., Haneuse, S., Hernández-Díaz, S., Landon, J. E., Bateman, B. T., Huybrechts, K. F. (2021). Development and validation of a pediatric comorbidity index. American Journal of Epidemiology, 190(5), 918–927. https://doi.org/10.1093/aje/kwaa244
Google Scholar Tao, G., Patel, C. G. (2016). State variation in enrollment gap, sexual activity, and chlamydia testing rate among young Medicaid women. Sexually Transmitted Diseases, 43(10), 595–598. https://doi.org/10.1097/OLQ.0000000000000508
Google Scholar Taylor, J. L., Pezzimenti, F., Burke, M. M., DaWalt, L. S., Lee, C. E., Rabideau, C. (2021). Development, feasibility, and acceptability of a nationally relevant parent training to improve service access during the transition to adulthood for youth with ASD. Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s10803-021-05128-z
Google Scholar Thomas, K. C., Parish, S. L., Williams, C. S. (2014). Healthcare expenditures for autism during times of school transition: Some vulnerable families fall behind. Maternal and Child Health Journal, 18(8), 1936–1944. https://doi.org/10.1007/s10995-014-1439-6
Google Scholar Thorin, E., Yovanoff, P., Irvin, L. (1996). Dilemmas faced by families during their young adults’ transitions to adulthood: A brief report. Mental Retardation, 34(2), 117–128.
Google Scholar | Medline Turcotte, P., Mathew, M., Shea, L. L., Brusilovskiy, E., Nonnemacher, S. L. (2016). Service needs across the lifespan for individuals with autism. Journal of Autism and Developmental Disorders, 46(7), 2480–2489. https://doi.org/10.1007/s10803-016-2787-4
Google Scholar Velott, D. L., Agbese, E., Mandell, D., Stein, B. D., Dick, A. W., Yu, H., Leslie, D. L. (2016). Medicaid 1915(c) Home- and Community-Based Services waivers for children with autism spectrum disorder. Autism, 20(4), 473–482. https://doi.org/10.1177/1362361315590806
Google Scholar Wang, L., Mandell, D. S., Lawer, L., Cidav, Z., Leslie, D. L. (2013). Healthcare service use and costs for autism spectrum disorder: A comparison between Medicaid and private insurance. Journal of Autism and Developmental Disorders, 43(5), 1057–1064. https://doi.org/10.1007/s10803-012-1649-y
Google Scholar Williams, M. E., Wheeler, B. Y., Linder, L., Jacobs, R. A. (2017). Evolving definitions of autism and impact on eligibility for developmental disability services: California case example. Intellectual and Developmental Disabilities, 55(3), 192–209. https://doi.org/10.1352/1934-9556-55.3.192
Google Scholar Williams, R. L. (2000). A note on robust variance estimation for cluster-correlated data. Biometrics, 56(2), 645–646. https://doi.org/10.1111/j.0006-341x.2000.00645.x
Google Scholar Zetlin, A. G., Turner, J. L. (1985). Transition from adolescence to adulthood: Perspectives of mentally retarded individuals and their families. American Journal of Mental Deficiency, 89(6), 570–579.
Google Scholar | Medline Zhang, T., Wilson, I. B., Youn, B., Lee, Y., Shireman, T. I. (2020). Factors associated with antiretroviral therapy reinitiation in Medicaid recipients with human immunodeficiency virus. Journal of Infectious Diseases, 221(10), 1607–1611. https://doi.org/10.1093/infdis/jiz666
Google Scholar

留言 (0)

沒有登入
gif