Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

1. Hibbard, JH. Patient activation and the use of information to support informed health decisions. Patient Educ Couns 2017; 100(1): 5–7.
Google Scholar | Crossref | Medline2. Grünloh, C, Myreteg, G, Cajander, Å, et al. Why do they need to check me? Patient participation through eHealth and the doctor-patient relationship: qualitative study. J Med Internet Res 2018; 20(1): e11.
Google Scholar | Crossref3. de Lusignan, S, Mold, F, Sheikh, A, et al. Patients’ online access to their electronic health records and linked online services: a systematic interpretative review. BMJ Open 2014; 4(9): e006021.
Google Scholar | Crossref | Medline4. Nazi, KM, Turvey, CL, Klein, DM, et al. VA OpenNotes: exploring the experiences of early patient adopters with access to clinical notes. J Am Med Inform Assoc 2015; 22(2): 380–389.
Google Scholar | Crossref | Medline5. Moll, J, Cajander, Å. Oncology health-care professionals’ perceived effects of patient accessible electronic health records 6 years after launch: a survey study at a major university hospital in Sweden. Health Inform J 2020; 26(2): 1392–1403.
Google Scholar | SAGE Journals | ISI6. Baile, WF, Buckman, R, Lenzi, R, et al. SPIKES—a six-step protocol for delivering bad news: application to the patient with cancer. Oncologist 2000; 5(4): 302–311.
Google Scholar | Crossref | Medline7. Choe, EK, Duarte, ME, Suh, H, et al. Communicating bad news: insights for the design of consumer health technologies. JMIR Hum Factors 2019; 6(2): e8885.
Google Scholar | Crossref | Medline8. Rexhepi, H, Åhlfeldt, R-M, Cajander, Å, et al. Cancer patients’ attitudes and experiences of online access to their electronic medical records: a qualitative study. Health Inform J 2018; 24(2): 115–124.
Google Scholar | SAGE Journals | ISI9. Walker, J, Leveille, S, Bell, S, et al. OpenNotes after 7 years: patient experiences with ongoing access to their clinicians’ outpatient visit notes. J Med Internet Res 2019; 21(5): e13876.
Google Scholar | Crossref10. Walker, J, Meltsner, M, Delbanco, T. US experience with doctors and patients sharing clinical notes. BMJ 2015; 350: g7785.
Google Scholar11. Delbanco, T, Walker, J, Bell, SK, et al. Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead. Ann Intern Med 2012; 157(7): 461–470.
Google Scholar | Crossref | Medline | ISI12. Pearce, C, Bainbridge, M. A personally controlled electronic health record for Australia. J Am Med Inform Assoc 2014; 21(4): 707–713.
Google Scholar | Crossref | Medline13. Kaipio, J, Lääveri, T, Hyppönen, H, et al. Usability problems do not heal by themselves: National survey on physicians’ experiences with EHRs in Finland. Int J Med Inform 2017; 97: 266–281.
Google Scholar | Crossref | Medline14. Wiljer, D, Urowitz, S, Apatu, E, et al. Patient accessible electronic health records: exploring recommendations for successful implementation strategies. J Med Internet Res 2008; 10(4): e34.
Google Scholar | Crossref | Medline15. Rahbek, JN. E-record-access to all Danish public health records. Stud Health Technol Inform 2013; 192: 1121.
Google Scholar | Medline16. Mold, F, De Lusignan, S. Patients’ online access to their primary care electronic health records and linked online services: implications for research and practice. J Pers Med 2015; 5(4): 452–469.
Google Scholar | Crossref | Medline17. Moll, J, Rexhepi, H, Cajander, Å, et al. Patients’ experiences of accessing their electronic health records: national patient survey in Sweden. J Med Internet Res 2018; 20(11): e278.
Google Scholar | Crossref | Medline18. Wells, S, Mahony, F, Huang, Y, et al. Perspectives of New Zealand patients and GPs at the beginning of patient portal implementation. J Prim Health Care 2019; 11(4): 315–326.
Google Scholar | Crossref19. Joustra-Enquist, I, Eklund, B. SUSTAINS—direct access for the patient to the medical record over the Internet. MEDINFO 2004; 400: 1673.
Google Scholar20. Gerard, M, Fossa, A, Folcarelli, PH, et al. What patients value about reading visit notes: a qualitative inquiry of patient experiences with their health information. J Med Internet Res 2017; 19(7): e237.
Google Scholar | Crossref | Medline21. Wolff, JL, Darer, JD, Berger, A, et al. Inviting patients and care partners to read doctors’ notes: OpenNotes and shared access to electronic medical records. J Am Med Inform Assoc 2017; 24(e1): e166–e172.
Google Scholar | Medline22. Ross, SE, Lin, C-T. The effects of promoting patient access to medical records: a review. J Am Med Inform Assoc 2003; 10(2): 129–138.
Google Scholar | Crossref | Medline | ISI23. Johansen, MA, Kummervold, PE, Sørensen, T, et al. Health professionals’ experience with patients accessing their electronic health records: results from an online survey. Stud Health Technol Inform 2019; 264: 504–508.
Google Scholar | Medline24. Buckman, R . How to break bad news: a guide for health care professionals. Baltimore: JHU Press, 1992.
Google Scholar | Crossref25. Hulsman, RL, Pranger, S, Koot, S, et al. How stressful is doctor–patient communication? Physiological and psychological stress of medical students in simulated history taking and bad-news consultations. Int J Psychophysiol 2010; 77(1): 26–34.
Google Scholar | Crossref | Medline26. Seifart, C, Hofmann, M, Bär, T, et al. Breaking bad news–what patients want and what they get: evaluating the SPIKES protocol in Germany. Ann Oncol 2014; 25(3): 707–711.
Google Scholar | Crossref | Medline27. Fallowfield, L, Jenkins, V. Effective communication skills are the key to good cancer care. Eur J Cancer 1999; 35(11): 1592–1597.
Google Scholar | Crossref | Medline | ISI28. Sobczak, K, Leoniuk, K, Janaszczyk, A. Delivering bad news: patient’s perspective and opinions. Patient Prefer Adherence 2018; 12: 2397.
Google Scholar | Crossref | Medline29. Sparks, L, Villagran, MM, Parker-Raley, J, et al. A patient-centered approach to breaking bad news: communication guidelines for health care providers. J Appl Commun Res 2007; 35(2): 177–196.
Google Scholar | Crossref | ISI30. Abazari, P, Taleghani, F, Hematti, S, et al. Exploring perceptions and preferences of patients, families, physicians, and nurses regarding cancer disclosure: a descriptive qualitative study. Support Care Cancer 2016; 24(11): 4651–4659.
Google Scholar | Crossref | Medline31. Parker, PA, Baile, WF, de Moor, C, et al. Breaking bad news about cancer: patients’ preferences for communication. J Clin Oncol 2001; 19(7): 2049–2056.
Google Scholar | Crossref | Medline | ISI32. Choudhry, A, Hong, J, Chong, K, et al. Patients’ preferences for biopsy result notification in an era of electronic messaging methods. JAMA Dermatol 2015; 151(5): 513–521.
Google Scholar | Crossref | Medline33. Leekha, S, Thomas, KG, Chaudhry, R, et al. Patient preferences for and satisfaction with methods of communicating test results in a primary care practice. Jt Comm J Qual Patient Saf 2009; 35(10): 497–AP4.
Google Scholar | Medline34. Grimes, GC, Reis, MD, Budati, G, et al. Patient preferences and physician practices for laboratory test results notification. J Am Board Fam Med 2009; 22(6): 670–676.
Google Scholar | Crossref | Medline35. Al-Shakhli, H, Harcourt, D, Kenealy, J. Psychological distress surrounding diagnosis of malignant and nonmalignant skin lesions at a pigmented lesion clinic. J Plast Reconstr Aesthet Surg 2006; 59(5): 479–486.
Google Scholar | Crossref | Medline36. Woolen, S, Kazerooni, EA, Wall, A, et al. Waiting for radiology test results: patient expectations and emotional disutility. J Am Coll Radiol 2018; 15(2): 274–281.
Google Scholar | Crossref | Medline37. Wiljer, D, Leonard, KJ, Urowitz, S, et al. The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients. BMC Med Inform Decis Mak 2010; 10(1): 46.
Google Scholar | Crossref | Medline38. Baldwin, DM, Quintela, J, Duclos, C, et al. Patient preferences for notification of normal laboratory test results: a report from the ASIPS collaborative. BMC Fam Pract 2005; 6(1): 11.
Google Scholar | Crossref | Medline39. Xesfingi, S, Vozikis, A. eHealth literacy: in the quest of the contributing factors. Interact J Med Res 2016; 5(2): e16.
Google Scholar | Crossref | Medline40. Crameri, K-A, Maher, L, Van Dam, P, et al. Personal electronic healthcare records: What influences consumers to engage with their clinical data online? A literature review. Health Inf Manage J. Epub ahead of print 10 January 2020. DOI: 10.1177/1833358319895369.
Google Scholar | Crossref

留言 (0)

沒有登入
gif