Coping with Multiple Chronic Conditions in the Family Context: A Meta-Synthesis

Amer Nordin, A., Mohd Hairi, F., Choo, W. Y., Hairi, N. N. (2019). Care recipient multimorbidity and health impacts on informal caregivers: A systematic review. The Gerontologist, 59(5), e611–e628. https://doi.org/10.1093/geront/gny072
Google Scholar Aromataris, E., Munn, Z. (Eds.). (2020). JBI manual for evidence synthesis. https://doi.org/10.46658/JBIMES-20-01 Available from https://synthesismanual.jbi.global
Google Scholar Barnett, K., Mercer, S. W., Norbury, M., Watt, G., Wyke, S., Guthrie, B. (2012). Epidemiology of multimorbidity and implications for health care, research, and medical education: A cross-sectional study. Lancet, 380(9836), 37–43. https://doi.org/10.1016/s0140-6736(12)60240-2
Google Scholar Bayliss, E. A., Steiner, J. F., Fernald, D. H., Crane, L. A., Main, D. S. (2003). Descriptions of barriers to self-care by persons with comorbid chronic diseases. Annals of Family Medicine, 1(1), 15–21. https://doi.org/10.1370/afm.4
Google Scholar Beck, C. T. (2009). Metasynthesis: A goldmine for evidence-based practice. AORN Journal, 90(5), 701–710. https://doi.org/10.1016/j.aorn.2009.06.025
Google Scholar Cheng, C., Bai, J., Yang, C. Y., Li, M., Inder, K., Chan, S. W. (2019). Patients’ experiences of coping with multiple chronic conditions: A qualitative descriptive study. Journal of Clinical Nursing, 28(23–24), 4400–4411. https://doi.org/10.1111/jocn.15022
Google Scholar Cheng, C., Inder, K., Chan, S. W. (2019). Patients’ experiences of coping with multiple chronic conditions: A meta-ethnography of qualitative work. International Journal of Mental Health Nursing, 28(1), 54–70. https://doi.org/10.1111/inm.12544
Google Scholar Cheng, C., Inder, K., Chan, S. W. (2020). Coping with multiple chronic conditions: An integrative review. Nursing & Health Sciences, 22(3), 486–497. https://doi.org/10.1111/nhs.12695
Google Scholar Das, D., Ali, M., Hussain, I. A., Ingram, J., Johnstone, R. S., Lopes, J. J., Wadee, T., Chakraborty, N. (2021). What do we know about patients’ perspectives and expectations relating to palliative and end-of-life care in advanced liver disease? A systematic review of qualitative literature using ENTREQ guidelines. BMJ Supportive & Palliative Care. Published Online First: 07 July 2021. https://doi.org/10.1136/bmjspcare-2021-003057
Google Scholar Eckerblad, J., Waldréus, N., Stark Å, J., Jacobsson, L. R. (2020). Symptom management strategies used by older community-dwelling people with multimorbidity and a high symptom burden—A qualitative study. BMC Geriatrics, 20(1), 210. https://doi.org/10.1186/s12877-020-01602-y
Google Scholar Erwin, E. J., Brotherson, M. J., Summers, J. A. (2011). Understanding qualitative metasynthesis: Issues and opportunities in early childhood intervention research. Journal of Early Intervention, 33(3), 186–200. https://doi.org/10.1177/1053815111425493
Google Scholar Friedman, M. M., Bowden, V. R., Jones, E. G. (2003). Family nursing: Research, theory, and practice. Prentice Hall.
Google Scholar Ge, L., Yap, C. W., Heng, B. H. (2018). Sex differences in associations between multimorbidity and physical function domains among community-dwelling adults in Singapore. PLoS One, 13(5), e0197443. https://doi.org/10.1371/journal.pone.0197443
Google Scholar Gunn, J. M., Ayton, D. R., Densley, K., Pallant, J. F., Chondros, P., Herrman, H. E., Dowrick, C. F. (2012). The association between chronic illness, multimorbidity and depressive symptoms in an Australian primary care cohort. Social Psychiatry and Psychiatric Epidemiology, 47(2), 175–184. https://doi.org/10.1007/s00127-010-0330-z
Google Scholar Harlan, E. A., Miller, J., Costa, D. K., Fagerlin, A., Iwashyna, T. J., Chen, E. P., Lipman, K., Valley, T. S. (2020). Emotional experiences and coping strategies of family members of critically ill patients. Chest, 158(4), 1464–1472. https://doi.org/10.1016/j.chest.2020.05.535
Google Scholar Ho, J. W., Kuluski, K., Im, J. (2017). “It’s a fight to get anything you need”—Accessing care in the community from the perspectives of people with multimorbidity. Health Expectations, 20(6), 1311–1319. https://doi.org/10.1111/hex.12571
Google Scholar Jensen, L. A., Allen, M. N. (1996). Meta-synthesis of qualitative findings. Qualitative Health Research, 6(4), 553–560. https://doi.org/10.1177/104973239600600407
Google Scholar Jeon, Y. H., Jowsey, T., Yen, L., Glasgow, N. J., Essue, B., Kljakovic, M., Pearce-Brown, C., Mirzaei, M., Usherwood, T., Jan, S., Kraus, S. G., Aspin, C. (2010). Achieving a balanced life in the face of chronic illness. Australian Journal of Primary Health, 16(1), 66–74. https://doi.org/10.1071/py09039
Google Scholar Kaakinen, R., Gedaly-Duff, V., Coelho, D., Hanson, S. (2010). Family health care theory practice and research (4th ed.). F.A Davis Company Philadelphia
Google Scholar Kanesarajah, J., Waller, M., Whitty, J. A., Mishra, G. D. (2018). Multimorbidity and quality of life at mid-life: A systematic review of general population studies. Maturitas, 109, 53–62. https://doi.org/10.1016/j.maturitas.2017.12.004
Google Scholar Lau, J. H., Abdin, E., Jeyagurunathan, A., Seow, E., Ng, L. L., Vaingankar, J. A., Chong, S. A., Subramaniam, M. (2021). The association between caregiver burden, distress, psychiatric morbidity and healthcare utilization among persons with dementia in Singapore. BMC Geriatrics, 21(1), 67. https://doi.org/10.1186/s12877-021-02014-2
Google Scholar Lazarus, R. S., Folkman, S. (1984). Stress, appraisal, and coping. Springer Publishing Co Inc.
Google Scholar Löffler, C., Kaduszkiewicz, H., Stolzenbach, C. O., Streich, W., Fuchs, A., van den Bussche, H., Stolper, F., Altiner, A. (2012). Coping with multimorbidity in old age—A qualitative study. BMC Family Practice, 13, 45. https://doi.org/10.1186/1471-2296-13-45
Google Scholar Major, C., Savin-Baden, M. (2010). An introduction to qualitative research synthesis: Managing the information explosion in social science research. Routledge.
Google Scholar Mason, B., Nanton, V., Epiphaniou, E., Murray, S. A., Donaldson, A., Shipman, C., Daveson, B. A., Harding, R., Higginson, I. J., Munday, D., Barclay, S., Dale, J., Kendall, M., Worth, A., Boyd, K. (2016). ‘My body’s falling apart.’ Understanding the experiences of patients with advanced multimorbidity to improve care: Serial interviews with patients and carers. BMJ Supportive & Palliative Care, 6(1), 60–65. https://doi.org/10.1136/bmjspcare-2013-000639
Google Scholar McCuibbin, H., Patterson, J. (1984). Systematic assessment of family stress, resources and coping: Tools for research, education and clinical intervention. Family Relations, 33, 343. https://doi.org/10.2307/583820
Google Scholar Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097. https://doi.org/10.1371/journal.pmed.1000097
Google Scholar Morales-Asencio, J. M., Martin-Santos, F. J., Kaknani, S., Morilla-Herrera, J. C., Cuevas Fernández-Gallego, M., García-Mayor, S., León-Campos, Á., Morales-Gil, I. M. (2016). Living with chronicity and complexity: Lessons for redesigning case management from patients’ life stories—A qualitative study. Journal of Evaluation in Clinical Practice, 22(1), 122–132. https://doi.org/10.1111/jep.12300
Google Scholar National Academies of Sciences, Engineering, and Medicine . (2016). Families caring for an aging America. The National Academies Press. https://doi.org/10.17226/23606.
Google Scholar Peacock, S., Sethi, B., Williams, A., Duggleby, W., Bayly, M., Swindle, J., Ploeg, J., Markle-Reid, M. (2017). Older adult spouses with multiple chronic conditions: Challenges, rewards, and coping strategies. Canadian Journal on Aging, 36(2), 209–222. https://doi.org/10.1017/S0714980817000095
Google Scholar Picco, L., Achilla, E., Abdin, E., Chong, S. A., Vaingankar, J. A., McCrone, P., Chua, H. C., Heng, D., Magadi, H., Ng, L. L., Prince, M., Subramaniam, M. (2016). Economic burden of multimorbidity among older adults: Impact on healthcare and societal costs. BMC Health Services Research, 16, 173. https://doi.org/10.1186/s12913-016-1421-7
Google Scholar Pinquart, M., Sörensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18(4), 577–595. https://doi.org/10.1017/s1041610206003462
Google Scholar Pinelli, J. (2000). Effects of family coping and resources on family adjustment and parental stress in the acute phase of the NICU experience. Neonatal Network, 19(6), 27–37. https://doi.org/10.1891/0730-0832.19.6.27
Google Scholar Plessis, L., Golay, P., Wilquin, H., Favrod, J., Rexhaj, S. (2018). Internal validity of the French version of the Family Coping Questionnaire (FCQ): A confirmatory factor analysis. Psychiatry Research, 269, 337–344. https://doi.org/10.1016/j.psychres.2018.08.021
Google Scholar Prior, A., Fenger-Grøn, M., Larsen, K. K., Larsen, F. B., Robinson, K. M., Nielsen, M. G., Christensen, K. S., Mercer, S. W., Vestergaard, M. (2016). The association between perceived stress and mortality among people with multimorbidity: A prospective population-based cohort study. American Journal of Epidemiology, 184(3), 199–210. https://doi.org/10.1093/aje/kwv324
Google Scholar Reinhard, S. C., Brassard, A. (2020). Nurses leading the way to better support family caregivers. The Online Journal of Issues in Nursing, 25(1), Manuscript 1. https://doi.org/10.3912/OJIN.Vol25No01Man01
Google Scholar Rexhaj, S., Jose, A. E., Golay, P., Favrod, J. (2016). Perceptions of schizophrenia and coping styles in caregivers: Comparison between India and Switzerland. Journal of Psychiatric and Mental Health Nursing, 23(9–10), 585–594. https://doi.org/10.1111/jpm.12345
Google Scholar Roberto, K. A., McCann, B. R. (2011). Everyday health and identity management among older women with chronic health conditions. Journal of Aging Studies, 25(2), 94–100. https://doi.org/10.1016/j.jaging.2010.08.017
Google Scholar Schulman-Green, D., Jaser, S. S., Park, C., Whittemore, R. (2016). A metasynthesis of factors affecting self-management of chronic illness. Journal of Advanced Nursing, 72(7), 1469–1489. https://doi.org/10.1111/jan.12902
Google Scholar Schulman-Green, D., Feder, S. L., Dionne-Odom, J. N., Batten, J., En Long, V. J., Harris, Y., Wilpers, A., Wong, T., Whittemore, R. (2021). Family caregiver support of patient self-management during chronic, life-limiting illness: A qualitative metasynthesis. Journal of Family Nursing, 27(1), 55–72. https://doi.org/10.1177/1074840720977180
Google Scholar Stubbs, B., Vancampfort, D., Veronese, N., Schofield, P., Lin, P. Y., Tseng, P. T., Solmi, M., Thompson, T., Carvalho, A. F., Koyanagi, A. (2018). Multimorbidity and perceived stress: A population-based cross-sectional study among older adults across six low- and middle-income countries. Maturitas, 107, 84–91. https://doi.org/10.1016/j.maturitas.2017.10.007
Google Scholar Thomas, P., Lalloué, F., Preux, P. M., Hazif-Thomas, C., Pariel, S., Inscale, R., Belmin, J., Clément, J. P. (2006). Dementia patients caregivers quality of life: The PIXEL study. International Journal of Geriatric Psychiatry, 21(1), 50–56. https://doi.org/10.1002/gps.1422
Google Scholar Tong, A., Flemming, K., McInnes, E., Oliver, S., Craig, J. (2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Medical Research Methodology, 12, 181. https://doi.org/10.1186/1471-2288-12-181
Google Scholar Townsend, A., Wyke, S., Hunt, K. (2006). Self-managing and managing self: Practical and moral dilemmas in accounts of living with chronic illness. Chronic Illness, 2(3), 185–194. https://doi.org/10.1177/17423953060020031301
Google Scholar Townsend, A. (2012). Applying Bourdieu’s theory to accounts of living with multimorbidity. Chronic Illness, 8(2), 89–101. https://doi.org/10.1177/1742395311420178
Google Scholar Vancampfort, D., Koyanagi, A., Hallgren, M., Probst, M., Stubbs, B. (2017). The relationship between chronic physical conditions, multimorbidity and anxiety in the general population: A global perspective across 42 countries. General Hospital Psychiatry, 45, 1–6. https://doi.org/10.1016/j.genhosppsych.2016.11.002
Google Scholar Walden, E. L. (2009). An exploration of the experience of lesbians with chronic illness. Journal of Homosexuality, 56(5), 548–574. https://doi.org/10.1080/00918360903005220
Google Scholar Walsh, D., Downe, S. (2005). Meta-synthesis method for qualitative research: A literature review. Journal of Advanced Nursing, 50(2), 204–211. https://doi.org/10.1111/j.1365-2648.2005.03380.x
Google Scholar Warren-Jeanpiere, L., Dillaway, H., Hamilton, P., Young, M., Goparaju, L. (2014). Taking it one day at a time: African American women aging with HIV and co-morbidities. AIDS Patient Care STDS, 28(7), 372–380. https://doi.org/10.1089/apc.2014.0024
Google Scholar Whitehead, L., Jacob, E., Towell, A., Abu-Qamar, M., Cole-Heath, A. (2018). The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing, 27(1-2), 22–30. https://doi.org/doi:10.1111/jocn.13775
Google Scholar Whittemore, R., Dixon, J. (2008). Chronic illness: The process of integration. Journal of Clinical Nursing, 17(7b), 177–187. https://doi.org/10.1111/j.1365-2702.2007.02244.x
Google Scholar World Health Organization [WHO] . (2013, May 31). Global action plan for the prevention and control of NCDs 2013–2020. http://apps.who.int/iris/bitstream/handle/10665/94384/9789241506236_eng.pdf;jsessionid=4E0A3C125A9EA92EA70E812B5F667A54?sequence=1
Google Scholar World Health Organization [WHO] . (2016, December 13). Multimorbidity: Technical series on safer primary care. https://apps.who.int/iris/bitstream/handle/10665/252275/9789241511650-eng.pdf?sequence=1&isAllowed=y
Google Scholar

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