Old Order Amish Family Management of Children With Genetic Conditions

Agar, M. (1980). The professional stranger: An informal introduction to ethnography. Academic Press.
Google Scholar Anderson, C., Potts, L. (2020). The Amish health culture and culturally sensitive services: An exhaustive narrative review. Social Science & Medicine, 265, 113466. https://doi.org/10.1016/j.socscimed.2020.113466
Google Scholar Armer, J. M., Radina, M. E. (2006). Definition of health and health promotion behaviors among Midwestern Old Order Amish families. The Journal of Multicultural Nursing & Health, 12(3), 44–53.
Google Scholar Ayres, L., Kavanaugh, K., Knafl, K. A. (2003). Within-case and across-case approaches to qualitative data analysis. Qualitative Health Research, 13(6), 871–883. https://doi.org/10.1177/1049732303013006008
Google Scholar Balch, P. A. (2010). Prescription for nutritional healing (5th ed.). Avery.
Google Scholar Bernard, H. R. (2017). Research methods in anthropology: Qualitative and quantitative approaches (6th ed.). Rowman & Littlefield.
Google Scholar Cates, J. A. (2014). Serving the Amish: A cultural guide for professionals. Johns Hopkins University Press.
Google Scholar Cuyún Carter, G. B., Katz, M. L., Ferketich, A. K., Clinton, S. K., Grainger, E. M., Paskett, E. D., Bloomfield, C. D. (2012). The use of daily aspirin, nutritional supplements and alternative medications among Amish and non-Amish living in Ohio Appalachia. Nutrition & Cancer, 64(7), 911–918. https://doi.org/10.1080/01635581.2012.714046
Google Scholar Deatrick, J. A. (2017). Where is “family” in the social determinants of health? Implications for family nursing practice, research, education, and policy [Guest Editorial]. Journal of Family Nursing, 23(4), 423–433. https://doi.org/10.1177/1074840717735287
Google Scholar Farrar, H. M., Kulig, J., Sullivan-Wilson, J. (2018). Older adult caregiving in an Amish community. Research in Gerontological Nursing, 11(1), 29–38. https://doi.org/10.3928/19404921-20171128-02
Google Scholar Gallo, A. M., Angst, D. B., Knafl, K. A., Twomey, J. G., Hadley, E. (2010). Health care professionals’ views of sharing information with families who have a child with a genetic condition. Journal of Genetic Counseling, 19(3), 296–304. https://doi.org/10.1007/s10897-010-9286-0
Google Scholar Gallo, A. M., Knafl, K. A. (1998). Parents’ reports of “tricks of the trade” for managing childhood chronic illness. Journal for Specialists in Pediatric Nursing, 3(3), 93–100. https://doi.org/10.1111/j.1744-6155.1998.tb00213.x
Google Scholar Gallo, A. M., Knafl, K. A., Angst, D. (2009). Information management in families who have a child with a genetic condition. Journal of Pediatric Nursing, 24(3), 194–204. https://dx.doi.org/10.1016%2Fj.pedn.2008.07.010
Google Scholar Garro, L. C. (2000). Cultural knowledge as resource in illness narratives: Remembering through accounts of illness. In Mattingly, C., Garro, L. C. (Eds.), Narrative and the cultural construction of illness and healing (pp. 70–87). University of California Press.
Google Scholar Gerdner, L. A., Tripp-Reimer, T., Sorofman, B. (2002). Health beliefs and practices: The Iowa Old Order Amish. Journal of Multicultural Nursing & Health, 8(3), 65–71. https://doi.org/10.1111/j.1745-7599.1992.tb00822.x
Google Scholar Grover, A. (2012). The Amish farm in transition: The Amish response to modernization in northern Indiana, 1900-1920 [Master’s thesis]. University of Central Florida. https://stars.library.ucf.edu/etd/2451
Google Scholar Health and Human Services . (2011). HHS Action Plan to Reduce Racial and Ethnic Health Disparities: A Nation Free of Disparities in Health and Health Care [Data set]. Department of Health and Human Services. https://www.minorityhealth.hhs.gov/npa/files/Plans/HHS/HHS_Plan_complete.pdf
Google Scholar Immergrun Inc . (2010). Immergrun: Nonprofit, publicly supported organization. http://immergrun.org/
Google Scholar International Family Nursing Association . (2013). IFNA Position Statement on Pre-licensure Family Nursing Education. https://internationalfamilynursing.org/2015/07/25/ifna-position-statement-on-pre-licensure-family-nursing-education
Google Scholar Knafl, K. A., Deatrick, J. A. (1990). Family management style: Concept analysis and development. Journal of Pediatric Nursing, 5(1), 4–14.
Google Scholar | Medline Knafl, K. A., Deatrick, J. A., Gallo, A. M., Skelton, B. (2021). Tracing the use of the Family Management Framework and Measure: A scoping review. Journal of Family Nursing, 27(2), 87–106. https://doi.org/10.1177/1074840721994331
Google Scholar Knafl, K. A., Deatrick, J. A., Havill, N. L. (2012). Continued development of the Family Management Style Framework. Journal of Family Nursing, 18(1), 11–34. https://doi.org/10.1177/1074840711427294
Google Scholar Knafl, K. A., Deatrick, J. A., Knafl, G. J., Gallo, A. M., Grey, M., Dixon, J. (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28(6), 523–535. https://doi.org/10.1016/j.pedn.2013.03.006
Google Scholar Knapp, C., Madden, V., Marcu, M. I. (2010). Factors that affect parent perceptions of provider–family partnership for children with special health care needs. Maternal & Child Health Journal, 14(5), 742–750. https://doi.org/10.1007/s10995-009-0503-0
Google Scholar Kraybill, D. B., Bowman, C. D. (2002). On the backroad to heaven: Old Order Hutterites, Mennonites, Amish, and Brethren. Johns Hopkins University Press.
Google Scholar Kraybill, D. B., Johnson-Weiner, K., Nolt, S. M. (2013). The Amish. Johns Hopkins University Press.
Google Scholar Kriebel, D. W. (2007). Powwowing among the Pennsylvania Dutch: A traditional medical practice in the modern world. Penn State University Press.
Google Scholar Lofland, J., Snow, D. A., Anderson, L., Lofland, L. H. (2006). Analyzing social settings: A guide to qualitative observation and analysis (4th ed.). Wadsworth/Thomson Learning.
Google Scholar Main, M. E., Williams, D., Jones, M. S. (2012). Treatment of burns with burns & wounds (B & W) ointment and leaf therapy. Journal of Alternative & Complementary Medicine, 18(2), 109–111. https://doi.org/10.1089/acm.2011.0416
Google Scholar Margolis, S., Moses, H. (1992). The Johns Hopkins Medical Handbook : The 100 major medical disorders of people over the age of 50: Plus a directory to the leading teaching hospitals, research organizations, treatment centers, and support groups. Rebus.
Google Scholar Miller, K., Yost, B., Abbott, C., Thompson, S., Dlugi, E., Adams, Z., Schulman, M., Strauss, N. (2017). Health needs assessment of plain populations in Lancaster County, Pennsylvania. Journal of Community Health, 42, 35–42. https://doi.org/10.1007/s10900-016-0223-5
Google Scholar Morton, D. H. (2012). Roads taken: Recollections, words, and images from meaningful work. Elizabethtown College. https://www.etown.edu/centers/young-center/files/hmorton-references/Roads%20Taken.pdf
Google Scholar Morton, D. H., Morton, C. S., Strauss, K. A., Robinson, D. L., Puffenberger, E. G., Hendrickons, C., Kelley, R. I. (2003). Pediatric medicine and the genetic disorders of the Amish and Mennonite people of Pennsylvania. American Journal of Medical Genetics, Part C, 121C, 5–17. https://doi.org/10.1002/ajmg.c.20002
Google Scholar National Institutes of Health, National Human Genome Research Institute . (2018). Genetic disorders. https://www.genome.gov/For-Patients-and-Families/Genetic-Disorders
Google Scholar Nolt, S. M. (2016). A history of the Amish (3rd ed.). Good Books.
Google Scholar Norton, S. A., Powers, B. A., Schmitt, M. H., Metzger, M., Fairbanks, E., Deluca, J., Quill, T. E. (2011). Navigating tensions: Integrating palliative care consultation services into an academic medical center setting. Journal of Pain & Symptom Management, 42(5), 680–690. https://doi.org/10.1016/j.jpainsymman.2011.02.010
Google Scholar Office of Minority Health, Health and Human Services . (2021). Health equity. https://thinkculturalhealth.hhs.gov/clas/standards
Google Scholar Patton, M. Q. (2014). Qualitative research & evaluation methods: Integrating theory and practice (4th ed.). SAGE.
Google Scholar Payne, M., Rupar, C. A., Siu, G. M., Siu, V. M. (2011). Amish, Mennonite, and Hutterite genetic disorder database. Paediatrics & Child Health, 16(3), e23–e24. https://doi.org/10.1093/pch/16.3.e23
Google Scholar Pfleger, P. (2019, September 11). How the live uninsured but stay healthy. Side Effects Public Media. https://www.sideeffectspublicmedia.org/community-health/2019-09-11/how-the-amish-live-uninsured-but-stay-healthy
Google Scholar Reiter, P. L., Katz, M. L., Ferketich, A. K., Paskett, E. D., Clinton, S. K., Bloomfield, C. D. (2009). Complementary and alternative medicine use among Amish and non-Amish residents of Ohio Appalachia. Online Journal of Rural Nursing & Health Care, 9(2), 33–44. https://doi.org/10.14574/ojrnhc.v9i2.84
Google Scholar Rohrer, K., Dundes, L. (2016). Sharing the load: Amish healthcare financing. Healthcare, 4(4), 92. https://doi.org/10.3390/healthcare4040092
Google Scholar Sauder, M. (2020). Choosing whom to trust: Autonomy versus reliance on others in medical decision making among plain Anabaptists. The Journal of Amish and Plain Anabaptist Studies, 8(1), 59–64.
Google Scholar Sharathkumar, A., Hardesty, B., Greist, A., Salter, J., Kerlin, M., Heiman, M., Sulkin, M., Shapiro, A. (2009). Variability in bleeding phenotype in Amish carriers of haemophilia B with the 31008 C–>T mutation. Haemophilia, 15(1), 91–100. https://doi.org/10.1111/j.1365-2516.2008.01792.x
Google Scholar Silver, C., Lewins, A. (2014). Using software in qualitative research: A step-by-step guide (2nd ed.). SAGE. https://doi.org/10.4135/9781473906907
Google Scholar Strauss, K. A., Puffenberger, E. G. (2009). Genetics, medicine, and the plain people. Annual Review of Genomics and Human Genetics, 10(1), 513–536. https://doi.org/10.1146/annurev-genom-082908-150040
Google Scholar Strauss, K. A., Puffenberger, E. G., Morton, D. H. (2012). One community’s effort to control genetic disease. American Journal of Public Health, 102(7), 1300–1306. https://doi.org/10.2105/AJPH.2011.300569
Google Scholar Tripp-Reimer, T., Choi, E., Kelley, L. S., Enslein, J. (2001). Cultural barriers to care: Inverting the problem. Diabetes Spectrum, 14(1), 13–22. https://doi.org/10.2337/diaspect.14.1.13
Google Scholar Tripp-Reimer, T., Sorofman, B., Lauer, G., Martin, M., Afifi, L. (1988). To be different from the world: Patterns of elder care among Iowa Old Order Amish. Journal of Cross Cultural Gerontology, 3(3), 185–195. https://doi.org/10.1007/BF00116676
Google Scholar von Gruenigen, V. E., Showalter, A. L., Gil, K. M., Frasure, H. E., Hopkins, M. P., Jenison, E. L. (2001). Complementary and alternative medicine use in the Amish. Complementary Therapies in Medicine, 9(4), 232–233. https://doi.org/10.1054/ctim.2001.0485
Google Scholar Wenger, A. F. (1988). The phenomenon of care in a high context culture: The Old Order Amish [Unpublished doctoral dissertation]. Wayne State University.
Google Scholar Wenger, A. F., Wenger, M. R. (2008). The Amish. In Purnell, L. D., Paulanka, B. J. (Eds.), Transcultural health care: A culturally competent approach (3rd ed., pp. 75–94). F.A. Davis.
Google Scholar Yohn, M. (2018, February 23). Pennsylvania Dutch: WellSpan tries to close cultural gap in health care. YorkDispatch. https://www.yorkdispatch.com/story/news/2018/02/23/wellspan-dutch-liaisons-seek-close-cultural-gap-local-health-care/364790002/
Google Scholar Young Center for Anabaptist and Pietist Studies . (2019). Amish studies. http://groups.etown.edu/amishstudies/
Google Scholar

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