[Comment] Are older people with disabilities neglected in the COVID-19 pandemic?

Older people have been a central focus during the COVID-19 pandemic, as more than 90% of deaths in the UK have been among people aged 60 years or older. Messages around social distancing and high vulnerability will resonate strongly with this age group. Less often considered is that many older people have disabilities—almost half (46%) of people aged 66 years and older in the UK.Office for National Statistics
Family Resources Survey: financial year 2019 to 2020. Having disabilities not only increases the risk of dying from COVID-19,Office for National Statistics
Updated estimates of coronavirus (COVID-19) related deaths by disability status, England: 24 January to 20 November 2020. but potentially also increases the adverse consequences of pandemic control, yet data on these dangers are scarce.In The Lancet Public Health, Andrew Steptoe and Giorgio Di GessaMental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study. have addressed this gap using data from the English Longitudinal Study of Ageing (ELSA) to compare the emotional and social effects on older people with and without physical disabilities during the early months of the COVID-19 pandemic. Their findings are stark. Older people with physical disabilities had significantly greater odds of having anxiety (odds ratio 2·23 [95% CI 1·72–2·89]; pThe added value of Steptoe and Di Gessa's studyMental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study. is that the researchers collected data in 2018–19, as well as during the early months of the COVID-19 pandemic in 2020. The observed differences in emotional health were already apparent between people with and without disabilities in 2018–19, and widened further during the pandemic. The study suggests that people with disabilities have a narrower margin of health, and are more susceptible to shocks than people without disabilities. The relevant question is therefore not why were the mental health impacts of the pandemic greater for people with disabilities, but rather, why did existing mental health gaps grow further during the pandemic? We do not yet have firm answers, but we can put forward a number of hypotheses.People with physical disabilities are likely to have an underlying condition, such as rheumatoid arthritis or stroke. Many of these are conditions that put people at higher risk from COVID-19.Williamson EJ Walker AJ Bhaskaran K et al.Factors associated with COVID-19-related death using OpenSAFELY. Health messaging in the UK clearly stated that most people who died from COVID-19 had pre-existing conditions. This messaging could translate into anxiety. In the ELSA study, people with physical disabilities were more likely to have received instructions to shield during the pandemic, and even without official instruction, might have decided to be cautious, realising that they faced increased risk. As a result, social contacts will have been reduced more among people with disabilities than among people without disabilities, as Steptoe and Di Gessa show,Mental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study. and shielding did in part explain the effects on loneliness among people with disabilities.Health and rehabilitation access might also have decreased, partly because non-urgent appointments were postponed or went online, and partly because people became too fearful to go to the doctor.Lebrasseur A Fortin-Bédard N Lettre J et al.Impact of COVID-19 on people with physical disabilities: a rapid review. Across Europe, an estimated 1·3–2·2 million people were not receiving the rehabilitation care that they needed each day because of reductions in services in the early months of the pandemic.Negrini S Grabljevec K Boldrini P et al.Up to 2·2 million people experiencing disability suffer collateral damage each day of COVID-19 lockdown in Europe. The consequences will be more pronounced for people with disabilities, who are more likely to need regular health care. Poor health-care access might exacerbate health and functioning declineLebrasseur A Fortin-Bédard N Lettre J et al.Impact of COVID-19 on people with physical disabilities: a rapid review. and thereby contribute to worse mental health.Another likely scenario is that mental health and social care services, which were already eroded by years of austerity, were further restricted during the pandemic.Comas-Herrera A Fernandez JL Hancock R et al.COVID-19: implications for the support of people with social care needs in England. Indeed, the Coronavirus Act specifically over-rode the Care Act in the UK. Most local authorities did not abandon their care obligations; however, qualitative evidence shows that many people with disabilities in the UK had problems with social care during the pandemic.Shakespeare T Watson N Brunner R et al.Disabled people in Britain and the impact of the COVID-19 pandemic.What is striking, as Steptoe and Di Gessa note,Mental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study. is the scarcity of research focusing on people with physical disabilities in the pandemic, also highlighted in a recent systematic review.Lebrasseur A Fortin-Bédard N Lettre J et al.Impact of COVID-19 on people with physical disabilities: a rapid review. There has been little consideration of the social and emotional impact of the COVID-19 pandemic for people with disabilities, and little assessment of COVID-19 risks themselves. The ELSA study showed that people with mobility impairments were more than 5 times more likely to be admitted to hospital for COVID-19, although the absolute number of people in the study admitted to hospital was small.Mental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study. Few other data are available on the risk of COVID-19 adverse outcomes among people with physical disabilities.Panagiotou OA Kosar CM White EM et al.Risk factors associated with all-cause 30-day mortality in nursing home residents with COVID-19. What we don't value as a society, we don't count, and so these effects remain concealed.

People with disabilities continue to be an afterthought, both in the pandemic response, but also in measuring its effect. COVID-19 is exacerbating a neglect that was already in place. The exclusions of people with disabilities are social choices, not inevitable consequences of a health condition, and they are not new. Steptoe and Di Gessa's study makes a welcome addition to the literature by showing how these issues were affected by the COVID-19 pandemic.

HK and TS are supported by the Foreign Commonwealth and Development Office as part of the PENDA programme of impact evaluations of disability projects in low-income and middle-income countries, outside the submitted work. TS is principal investigator of a UK Research and Innovation programme on disabled people in Britain and COVID-19, outside the submitted work.

References1.Office for National Statistics

Family Resources Survey: financial year 2019 to 2020.

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Updated estimates of coronavirus (COVID-19) related deaths by disability status, England: 24 January to 20 November 2020.

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Mental health and social experience of older people with physical disabilities in England during the COVID-19 pandemic: a longitudinal cohort study.

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Factors associated with COVID-19-related death using OpenSAFELY.

Nature. 584: 430-4365.Lebrasseur A Fortin-Bédard N Lettre J et al.

Impact of COVID-19 on people with physical disabilities: a rapid review.

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Up to 2·2 million people experiencing disability suffer collateral damage each day of COVID-19 lockdown in Europe.

Eur J Phys Rehabil Med. 56: 361-3657.Comas-Herrera A Fernandez JL Hancock R et al.

COVID-19: implications for the support of people with social care needs in England.

J Aging Soc Policy. 32: 365-3728.Shakespeare T Watson N Brunner R et al.

Disabled people in Britain and the impact of the COVID-19 pandemic.

9.Panagiotou OA Kosar CM White EM et al.

Risk factors associated with all-cause 30-day mortality in nursing home residents with COVID-19.

JAMA Intern Med. 181: 439-448Article InfoPublication History

Published: April 21, 2021

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DOI: https://doi.org/10.1016/S2468-2667(21)00077-3

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© 2021 The Author(s). Published by Elsevier Ltd.

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